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Epilepsy with Continuous Spikes and Waves During Slow-Wave Sleep (Electrical Status Epilepticus During Slow-Wave Sleep)

Fri, 11/04/2016 - 23:29
Hi everyone, my name is Gloria, and I am looking for adults or people with Epilepsy with Continuous Spikes and Waves During Slow-Wave Sleep (Electrical Status Epilepticus During Slow-Wave Sleep). My son is 11 and he has that type of epilepsy. We would like to know experiences about it. Since he is still little, I want to know how to help him, how to make his life at home and at school better. Thank you so much.

Comments

What you posted is

Submitted by just_joe on Sat, 2016-11-05 - 12:16
What you posted is information from an EEG. It does not have the type of epilepsy. The EEG shows the electrical output coming from the brain and not a seizure. Those spikes or waves are abnormalities which CAN cause a seizure. The EEG also knows where in the brain they  came from. They also know when the activity happened. In his case it was while he was asleep.I am glad to see a mother that wants to know how to help their children. Add a year or two and that was when I started having seizures. Just let him be a boy. he is no different from the boy next door. Find out the type of epilepsy he has and the type of seizures he could have. That way you can research an know what to look for. In school there should be someone in the nurses office that has information of epilepsy and what should be done if they have a student that had one. If they don't in the help section they have things that can be done to get the information or someone that can go teach tehm about epilepsy and what could and should be done.. You can also call the 24/7 help line and ask your questions about anything including school. That number is 1-800-332-1000I hope this helpsJoe

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