Epilepsy attacks in sleep but no signs of Epilepsy in any test reports

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I am 25 years old girl. I got my first attack when i was in 13 years old. The second attack when i was 18 years old. Since then I have being getting these attacks in around 2 - 5 months gap till date.

The weired part of my attacks are that i get them only during sleep.. either just within some minutes i fell asleep or early mornings.. All my attacks wer in sleep. The stranger thing is never in any of the EEG reports or CT Scan or MRI was any postive symptoms found. Consulted many doctors. I was put on oxicarabine for more than 3 years.. however i still used to get the attacks.

During my attacks i suddenly open my eyes.. and i start shivering and my ears ring a lot.. I loose then my concious.. I get up after sometime.. but i have a short term memory loss. Like the events that happened during the day. and have a severe headache and mostly my back side of my head pain.

I look forward for some feedbacks and guide me the way forward. My whole family is so very much disturbed and worried for me.

Thanks

Comments

Re: Epilepsy attacks in sleep but no signs of Epilepsy

Submitted by admin on Fri, 2011-11-04 - 20:20

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Re: Epilepsy in sleep but no signs of Epilepsy in any test

Submitted by Texas_med on Sat, 2011-11-05 - 01:56

My name is Shawn. I am a Paramedic/Nurse who has a history of seizures as well. I have had seizures since I was six months old (25 y/o now). I was having MRI's, CT scans, and EEG's come out clear and not showing any abnormal electrical activity or abnormal tissue. I finally got transferred to a neurologist at the age of 22, who realized that I couldn't be treated in any of our East Texas hospitals or clinics and he sent me to The University of Texas Southwestern Medical center in Dallas. The neurologists there did a regular EEG as well first thing, and then a sleep-deprived, but nothing showed up. The group of Neurologists at UT Southwestern decided to put me in the hospital and take me off of the medication I was on to try and induce seizures. They were successful. They finally pinpointed the location of where my seizures were starting, and also did a PET scan which showed scar tissue on the hippocampus of my left temporal lobe. They now have put me on the right mixture of medications and have made me seizure free for over three years. I tell alot of my patients that I encounter when I work the neurology unit at our hospital that if the neurologist you are currently at doesn't help get the seizures minimized or acts the least bit like he/she is shoving you off and ignoring you, find another one. One of the neurologists I work with even goes by the rule saying , "If I can't get the seizures under control after two years of treatment, or you've been treated unsuccessfully for two years by other neurologists when I see you, It's time for you to go to a University-Based-Medical Center." Although I mainly work in the ER, I get my fair share with the Neurologists in the neurology unit. As I found out, if you don't live in a big city, you may have to go there to find successful treatment options. The hospitals typically have more machines to diagnose the problem, stronger MRI machines (double the power of what small town hospitals have), and more treatment options. Dallas is where I was sent, and although it is a two-hour, one-way trip for me, I am glad to go there since they have given me the best treatment I've had since I started having seizures. If you have any questions, feel free to ask.

My name is Shawn. I am a Paramedic/Nurse who has a history of seizures as well. I have had seizures since I was six months old (25 y/o now). I was having MRI's, CT scans, and EEG's come out clear and not showing any abnormal electrical activity or abnormal tissue. I finally got transferred to a neurologist at the age of 22, who realized that I couldn't be treated in any of our East Texas hospitals or clinics and he sent me to The University of Texas Southwestern Medical center in Dallas. The neurologists there did a regular EEG as well first thing, and then a sleep-deprived, but nothing showed up. The group of Neurologists at UT Southwestern decided to put me in the hospital and take me off of the medication I was on to try and induce seizures. They were successful. They finally pinpointed the location of where my seizures were starting, and also did a PET scan which showed scar tissue on the hippocampus of my left temporal lobe. They now have put me on the right mixture of medications and have made me seizure free for over three years. I tell alot of my patients that I encounter when I work the neurology unit at our hospital that if the neurologist you are currently at doesn't help get the seizures minimized or acts the least bit like he/she is shoving you off and ignoring you, find another one. One of the neurologists I work with even goes by the rule saying , "If I can't get the seizures under control after two years of treatment, or you've been treated unsuccessfully for two years by other neurologists when I see you, It's time for you to go to a University-Based-Medical Center." Although I mainly work in the ER, I get my fair share with the Neurologists in the neurology unit. As I found out, if you don't live in a big city, you may have to go there to find successful treatment options. The hospitals typically have more machines to diagnose the problem, stronger MRI machines (double the power of what small town hospitals have), and more treatment options. Dallas is where I was sent, and although it is a two-hour, one-way trip for me, I  am glad to go there since they have given me the best treatment I've had since I started having seizures. If you have any questions, feel free to ask.

My name is Shawn. I am a Paramedic/Nurse who has a history of seizures as well. I have had seizures since I was six months old (25 y/o now). I was having MRI's, CT scans, and EEG's come out clear and not showing any abnormal electrical activity or abnormal tissue. I finally got transferred to a neurologist at the age of 22, who realized that I couldn't be treated in any of our East Texas hospitals or clinics and he sent me to The University of Texas Southwestern Medical center in Dallas. The neurologists there did a regular EEG as well first thing, and then a sleep-deprived, but nothing showed up. The group of Neurologists at UT Southwestern decided to put me in the hospital and take me off of the medication I was on to try and induce seizures. They were successful. They finally pinpointed the location of where my seizures were starting, and also did a PET scan which showed scar tissue on the hippocampus of my left temporal lobe. They now have put me on the right mixture of medications and have made me seizure free for over three years. I tell alot of my patients that I encounter when I work the neurology unit at our hospital that if the neurologist you are currently at doesn't help get the seizures minimized or acts the least bit like he/she is shoving you off and ignoring you, find another one. One of the neurologists I work with even goes by the rule saying , "If I can't get the seizures under control after two years of treatment, or you've been treated unsuccessfully for two years by other neurologists when I see you, It's time for you to go to a University-Based-Medical Center." Although I mainly work in the ER, I get my fair share with the Neurologists in the neurology unit. As I found out, if you don't live in a big city, you may have to go there to find successful treatment options. The hospitals typically have more machines to diagnose the problem, stronger MRI machines (double the power of what small town hospitals have), and more treatment options. Dallas is where I was sent, and although it is a two-hour, one-way trip for me, I am glad to go there since they have given me the best treatment I've had since I started having seizures. If you have any questions, feel free to ask.

Re: Epilepsy attacks in sleep but no signs in any test reports

Submitted by phylisfjohnson on Sun, 2011-11-06 - 12:18

You might consider:

Video EEG Monitoring – allows prolonged simultaneous recording of the patient’s behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and the patient’s behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: Whether events with unusual features are epileptic seizures…the type of epileptic seizure, and…the region of the brain from which the seizures arise.

Continuous Video EEG Monitoring – studies the brain waves over time. This can be accomplished through continuous Video EEG Monitoring, where a patient stays in a special unit for at least 24 hours. Antiepileptic medication is stopped for the duration of this test, since the objective is for seizures to occur so the abnormal brain waves they produce can be recorded.

A video camera connected to the EEG provides constant monitoring, enabling the medical team to pinpoint the area where a seizure occurs and track the patient’s physiological response to the seizure. Continuous monitoring can also help distinguish between epilepsy and other conditions. It can characterize the seizure type for more precise medication adjustments and locate the originating area of seizures within the brain.

Phylis Feiner Johnson

www.epilepsytalk.com

You might consider:

Video EEG Monitoring – allows prolonged simultaneous recording of the patient’s behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and the patient’s behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: Whether events with unusual features are epileptic seizures…the type of epileptic seizure, and…the region of the brain from which the seizures arise.

Continuous Video EEG Monitoring – studies the brain waves over time. This can be accomplished through continuous Video EEG Monitoring, where a patient stays in a special unit for at least 24 hours. Antiepileptic medication is stopped for the duration of this test, since the objective is for seizures to occur so the abnormal brain waves they produce can be recorded.

A video camera connected to the EEG provides constant monitoring, enabling the medical team to pinpoint the area where a seizure occurs and track the patient’s physiological response to the seizure. Continuous monitoring can also help distinguish between epilepsy and other conditions. It can characterize the seizure type for more precise medication adjustments and locate the originating area of seizures within the brain.

Phylis Feiner Johnson

www.epilepsytalk.com

Epilepsy attacks in sleep but no signs of Epilepsy in any test reports

Comments

Re: Epilepsy attacks in sleep but no signs of Epilepsy

Submitted by admin on Fri, 2011-11-04 - 20:20

Re: Epilepsy in sleep but no signs of Epilepsy in any test

Submitted by Texas_med on Sat, 2011-11-05 - 01:56

Re: Epilepsy attacks in sleep but no signs in any test reports

Submitted by phylisfjohnson on Sun, 2011-11-06 - 12:18

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