Community Forum

Topic: My Epilepsy Diary

Created By: Dianarlove19 | 2017-09-16 01:19 | 2 Comments

Hi, my name is diana. I was diagnosed with focal or partial seizure this July. I am 24 years old. I'm new to all this. So my question is, i feel as the medication has worsen my condition...

Created By: jan_zwart@ymail.com | 2017-08-03 21:58 | 0 Comments

HI feel as if I was somewhere else. like I was out of my body, feeling like I cant come back then I awake. I am all in a daze and I can't really tell if it was real I am looking at the...

Created By: dabld1 | 2017-07-23 17:55 | 0 Comments

Hello,I have been taking Lamictal since I was 13. I am currently taking 200mg but planning to increase it to 250/300mg and I have been seizure free for 6 years. I am planning to get pregnant and I...

Created By: Rebekee2110 | 2017-07-14 23:18 | 1 Comment

I was born on October 21, 1979. I can't recall if I was diagnosed with hydrocephalus before or after birth, but I wasn't born with epilepsy. That occurred after my first seizure in...

Created By: MartinC | 2017-06-22 15:23 | 1 Comment

Hi

So after years with epilepsy I have decided to finally start sharing experience. It's a bit blurry at the moment as I had seazure this morning and all my papers are with pharmacy as...

Created By: Jomxx | 2017-01-26 10:44 | 2 Comments

Current medication:
Keppra 500 mg on a morning
Keppra 1,000 mg on a night
Clonazepam 250g on a night (½ of a 500mg tablet) (started 14/12/2016)
Circadin 2mg on a night (...

Created By: Steven Z | 2016-12-22 14:42 | 0 Comments

The abnormal nature of my creative mind, I believe is connected to the source of my seizures. I was involved in the visual arts when I was younger. Denied a BA in Economics because of an inability...

Created By: gloriaejc | 2016-11-04 23:29 | 1 Comment

Hi everyone, my name is Gloria, and I am looking for adults or people with Epilepsy with Continuous Spikes and Waves During Slow-Wave Sleep (Electrical Status Epilepticus During Slow-Wave Sleep)....

Created By: Ashleyy245 | 2016-10-17 01:41 | 2 Comments

Okay so I'm 19 years old and since I'm in college I'm starting to blossom into the "party phase" of my life. I am always asked to do some kind of drugs when I am out but I...

Created By: JennyMcG | 2016-10-07 12:58 | 1 Comment

Hi guys,

This might be a little long, so I'll try to get right to the point. Hopefully someone here can shed some light on what has happened to me. Maybe it's a big deal and...

Created By: corleone52 | 2016-07-18 13:36 | 0 Comments

My name is Gary. At eight years of age I was diagnosed with epilepsy. Because of it, I had a very rough childhood. Everything from sibling rivalry(others jealous because of over attention) peer...

Created By: deanbean | 2016-05-11 07:45 | 0 Comments

So I was hanging out with my best friend at Wal-Mart and browsing the stuff the store had. At some point, I wanted to test out a bike with training wheels and give it a bit of a whirl, but it...

Created By: just_joe | 2015-12-02 10:24 | 3 Comments

Epihelp

I have been having problems getting into my diary. This has been happening for almost a week. I get to the first page and click to get to the page that I put my name and password...

Created By: carolyn23 | 2015-08-30 05:29 | 0 Comments

hi im new and was just diagnosed with the above topic and was wondering where to go for support

Created By: carolyn23 | 2015-08-30 05:29 | 0 Comments

hi im new and was just diagnosed with the above topic and was wondering where to go for support

Created By: mer33@hotmail.co.uk | 2015-07-26 11:43 | 1 Comment

My son has had tonic clonic seizures only and has been seizure free for nearly 2years. His neurologist wants him to come off his meds but I'm not sure. He is 17 now and the seizures started...

Created By: KonaT | 2015-06-06 22:59 | 2 Comments

Is it going to happen now

Will I lose control

Will I leave my body

Who will see

Who will be traumatized

Will it happen now

 

How can I trust myself...

Created By: klmt1231 | 2015-03-30 13:57 | 0 Comments

Hey all well I just had a huge seizure November 24th 2014 and it damaged my spinal cord so I am no longer able to feel bellow my knees and I can no longer walk. I already was depressed with my...

Created By: gonesolo | 2015-01-22 11:26 | 1 Comment

I was wondering if there are plans to make the diary apps for the Windows phone? I currently use an Android and find the app great for managing my Epilepsy/medications but work phones are changing...

Created By: Amandaryne6 | 2015-01-14 23:30 | 1 Comment

So I was diagnosed with Epilepsy only 2+ years ago.  Just the basic Grand-Mal seizures, no other kinds or anything.  They came out of nowhere, and still are uncontrolled.  About 2-3 months ago I...

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