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Study for men with epilepsy/sexuality
Tue, 04/05/2016 - 18:10Topic: Men With Epilepsy
I am a registered nurse with epilepsy who works with epilepsy patients.I am preparing to start a study on men with epilepsy and their sex lives.It is something that is seldom discussed between men and their doctors,but can be a serious concern.The study will involve a simple 10 question test that you can do online that is totally confidential.Hopefully,the results will give patients and physicians comfort and courage to discuss the results.Changes can be made to medications,hormone levels can be tested and medications can be given.Please consider participating when I post it...hopefully in the next 2 weeks.
Comments
I was diagnosed with TLE when
Submitted by Tanis5887 on Sat, 2019-11-23 - 15:24
I was diagnosed with TLE when I was 49 years old. I first became suspicious that I had a problem when I was anout 44. I was occasionally having auras and I also noticed that my libido was diminished. I am curreyly taking 400 mg of Dilantin and 100mg of Keppra dailiy. I am now 54 and my sex drive is non existant. It has been this way before I was diagnosed with epilepsy.
I was diagnosed with TLE when
Submitted by Tanis5887 on Sat, 2019-11-23 - 15:26
I was diagnosed with TLE when I was 49 years old. I first became suspicious that I had a problem when I was anout 44. I was occasionally having auras and I also noticed that my libido was diminished. I am curreyly taking 400 mg of Dilantin and 100mg of Keppra dailiy. I am now 54 and my sex drive is non existant. It has been this way before I was diagnosed with epilepsy.
I can very well attest to
Submitted by danny_wadsworth_@yahoo.com on Thu, 2019-06-13 - 23:56
I can very well attest to this, I've been accused by my own Dr who has "treated" me for years, viewed my MRI's, written my prescriptions and my own family who have heard HIS words when HE said, "You don't have Epilepsy, you just have seizures." (His "description" of my Epilepsy goes against exactly what The Epilepsy Foundation describes my condition to be) Prized possessions just "disappear themselves" and I'm told, "You just forgot what you did with them". I will NEVER loan ANYONE another dime in my life. The biggest thing I hate is being passed over for jobs because of my Epilepsy when I know I can and have worked circles around the flakes they employ now. I've had Right Temporal Lobe surgery and the issue was never brought up BY my Dr until I was put on disability and told my Dr I was interested in it, his response was, "Oh, you want THE SURGERY!" As if I had discovered the lost Ark. I've had the surgery and I'm seizure-free, I've learned more reading online than I've EVER learned from ANY Dr. WWIII is going to break out if ANY "Dr" ever, even says the words, "driver's license" to me, the only "Dr" who ever sees mine again will be the one who looks at it and says, "Yup, that WAS him." I don't walk into Neuro's offices anymore waiting to hear "words of wisdom", I've studied my condition, probably more than I should have and can easily tell someone who DOES NOT have Epilepsy, more than he claims to know about it.