Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Can TLE have this kind of effect?

Tue, 09/02/2014 - 18:01

Hello, everyone. I've been chasing down a mystery illness for over 20 years now. I think simple temporal lobe seizures *might* be a working model. I'll know more in about a month - I'm doing a four day EEG.

But as I said - chasing this for over 20 years. And I want to know if I'm chasing another phantom or not.

If TLE is my problem, I don't always have well-defined, "oh, that was obviously a seizure, or seizure-like activity."  I have things I notice: my heart rate will elevate to 80,90, 100, my BP will spike, I'll feel edgy and out of control emotionally and in my thoughts (bad memories, a tendency to feel very intense, and usually negative, emotions), I might feel bloated or mildly nauseous, I might have buzziness in my head (or my mouth - not a "bad taste" as some people report, but ... well, not *not a bad taste* - what else *would* I call it? Maybe it is a bad taste!) And these seem not-unlike the symptoms I've seen some people describe.

But interestingly, sex is a key indicator for me. If I'm able to get aroused, I'm usually having a good day - no symptoms, unless something triggers 'em later. If I'm barely able to get aroused, or completely unable, it's usually a bad day - either I will have some of the symptoms above, or worse - I'll be numb and super-mentally fatigued.

An arrhythmia might account for this too - if my heart isn't pumping effectively, we'd expect similar states - good days, sex is possible, bad days, it's not. Mental fatigue if my heart isn't working well, normal mental functioning if it is.

But here's the thing: if seems if I get excited (like the first time I saw Under Seige, and thought, *wow* kick-butt action beginning to end! - or, yes, "excited" as in aroused), it might trigger the whatever-it-is and bam - I'm now having a bad day... even if my heart rate hasn't shot up.

As I've kind-of set up, I'm looking at a heart condition as one possibility, and TLE as another. Which model fits better?

And if sex suddenly getting yanked completely off the table quickly and conclusively fits TLE, then I feel a bit more comfortable that I should concentrate my energies on that, and not pay attention to my heart. (Which I've already had thoroughly tested, including a full cardiac cath.)

But if that's awfully weird for TLE, then I should really dig in, because subtle heart problems are not good things for middle aged men to have, even if their arteries *are* clean and clear. 

As I said, I guess this is a bit silly, I'm scheduled for a 4-day EEG at the end of this month. But I still want to know if I'm chasing a phantom. Can anyone tell me if they've been diagnosed, and if this kind of thing happens to them?

 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.