Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What to do now

Thu, 06/02/2005 - 07:41

Topic: Medication Issues

Can anyone help i've been on quite a few mixtures of different tablets unfortnatly they havent worked i have complex partial seizures , but this lot is the last one i was on they were trilepleptal ( 6 weeks) ,tegretol retard(2 and half years) and keppra (18 months) i had a reaction to trileptal and had to come off them also they have took me off the tegretol so im just left with keppra, its not doing any good im having a seizure up to twice a day i dont see my neuro until July 6 but in the mean time i had some bad news yesterday that my dad has Cancer. Im now worried that because im not on enough meds and with the stress of my dad i will start to have more seizures and wont be any good to anyone. Can someone suggest anything. Ive tried talking to my nurse but she says just hang on in there and try the keppra on its own,

deep down i no its not gunna do any good, please any ideas wil be most welcome

Comments

RE: What to do now

Submitted by Kristi on Thu, 2005-06-02 - 07:41

Good Morning,

First, I'm so sorry to hear about your Dad.. What kind of vitamins do you take? My son is on B-Complex, Omega 3 Fatty Acids, Mag, calcium, Folic acid and a good multi vit. This is so important. Please watch your diet that is so important. We are lowering my son off of Trileptal and he will only be on Keppra also. I'm upping his vit. though.

Since you are under so much stress I really think the B-complex and Omega 3 fatty acids would really help. Just my opinion. Good Luck and God Bless Kristi

Good Morning,

Since you are under so much stress I really think the B-complex and Omega 3 fatty acids would really help. Just my opinion. Good Luck and God Bless Kristi

RE: What to do now

Submitted by Yakota on Fri, 2005-06-03 - 10:49

Hi. I am sorry to hear about your dad and the cancer. I do hope that he feels better soon. As for the AEDs it takes time. Finding the right AED is done through a process of elimination. Diet is so important, getting enough sleep too. When I first was diagnosed with E I didn't pay to much attention to diet. I sure do watch what I eat and drink now! There are so many things out there that trigger seizure. As you probably already know stay away from stimulants, caffine, etc. Eat lots of fresh brocolii. It is high in folic acid. Somehow the folic acid helps reduce seizure. Watch your sodim level as too little salt can trigger seizure. Bananas are suppose to be good in helping keep seizure away. (I am not sure what the bananas do?) Someone at this site mentioned about bananas. There are suppliments like the omega fatty acids, "B" vitamins, certain amino caids, oxygen drops and others that will help slow down the frequency of seizure. Talk to your neuro or local health food store to see if there is anyhing else that might help stop seizure. Be sure what you take will compliment the AED you are on. The best advice is to be informed. Stay up to date with E and research the subject. Know everything about the drugs you take, side effects, recommended dosages, etc. Ask lots of questions. I hope yo find something that works. All the best, Linda.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.