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WAITING FOR DIAGNOSES MEDICATION??
Fri, 06/10/2005 - 15:40Comments
RE: WAITING FOR DIAGNOSES MEDICATION??
Submitted by Belinda on Fri, 2005-06-10 - 10:26
RE: RE: WAITING FOR DIAGNOSES MEDICATION??
Submitted by mexican_fire on Fri, 2005-06-10 - 14:07
I agree with Belinda.
How would you expect her seizures to be controlled, if you don't allow her to have meds for it??? That is almost selfish of you to even consider such a choice.
Depending on what they turn up from the diagnosis with the VEEG, that will pretty much determine what type or types of seizures she has. Once they have that information, they can give her the drug they think will work the best for that specific type fo seizure.
Seizures do not go away on their own, and without meds can and sometimes do cause brain damage each time they seize.
Meds control the neuronal impulses within the brain causing them to slow down, reducing their excitiability and abnormal discharges, thus increasing the seizure threshold, and controlling the seizures.
In a non-epileptic person, then neurons produce discharges at 85x/sec. In an epileptic person, the discharges increase to 500x/sec.
Not giving your child medication, is equivalant to denying/depriving her of a chance to live a normal, productive, healthy and happy life, even as a child. She will actually be sicker without the meds, then she will be with them. She will be sick from having seizures and feeling the effects from that, which in my mind is far worse than pills.
I take the maximum amount of Neurontin--3600 mgs/day, and I take Depakote ER--1000 mgs/day.
All AEDs are going to cause side effects to an extent, but most normally go away with continued treatment for several weeks. I don't feel anything from my drugs at all. The only thing I have from the Depakote is a hand tremor, and transient hair loss. Nothing else. The Neurontin never produced any noticable side effects to me.
Please give your child her meds, if it turns out she needs them. It will allow her to function better, more clearly, her speech will be better, etc.
It isn't really an option whether to give them or not. ANYONE, and EVERYONE WITH EPILEPSY NEEDS DRUGS TO CONTROL SEIZURES. They don't control themselves and in time can get worse without treatment.
And I think I can speak for alot of us on this next thing. Despite side effects, we have all had good results most of the time with drugs, or we wouldn't be able to function. Those drugs are our life and without them, we are actually nothing. We can't fucntion, we seize right and left, we are post-ically sick for days, etc. It isn't worth it not take them. They do help.
Nancy
I agree with Belinda.
How would you expect her seizures to be controlled, if you don't allow her to have meds for it??? That is almost selfish of you to even consider such a choice.
Depending on what they turn up from the diagnosis with the VEEG, that will pretty much determine what type or types of seizures she has. Once they have that information, they can give her the drug they think will work the best for that specific type fo seizure.
Seizures do not go away on their own, and without meds can and sometimes do cause brain damage each time they seize.
Meds control the neuronal impulses within the brain causing them to slow down, reducing their excitiability and abnormal discharges, thus increasing the seizure threshold, and controlling the seizures.
In a non-epileptic person, then neurons produce discharges at 85x/sec. In an epileptic person, the discharges increase to 500x/sec.
Not giving your child medication, is equivalant to denying/depriving her of a chance to live a normal, productive, healthy and happy life, even as a child. She will actually be sicker without the meds, then she will be with them. She will be sick from having seizures and feeling the effects from that, which in my mind is far worse than pills.
I take the maximum amount of Neurontin--3600 mgs/day, and I take Depakote ER--1000 mgs/day.
All AEDs are going to cause side effects to an extent, but most normally go away with continued treatment for several weeks. I don't feel anything from my drugs at all. The only thing I have from the Depakote is a hand tremor, and transient hair loss. Nothing else. The Neurontin never produced any noticable side effects to me.
Please give your child her meds, if it turns out she needs them. It will allow her to function better, more clearly, her speech will be better, etc.
It isn't really an option whether to give them or not. ANYONE, and EVERYONE WITH EPILEPSY NEEDS DRUGS TO CONTROL SEIZURES. They don't control themselves and in time can get worse without treatment.
And I think I can speak for alot of us on this next thing. Despite side effects, we have all had good results most of the time with drugs, or we wouldn't be able to function. Those drugs are our life and without them, we are actually nothing. We can't fucntion, we seize right and left, we are post-ically sick for days, etc. It isn't worth it not take them. They do help.
Nancy
RE: WAITING FOR DIAGNOSES MEDICATION??
Submitted by mommy2kyra on Fri, 2005-06-10 - 10:22
My girls don't have E, so I can't offer any specific advice on medications. But I have heard that the ketogenic diet is particularly helpful in children. You may want to try the diet, before meds, jmi. (((((hugs))))))
Heather :)
My girls don't have E, so I can't offer any specific advice on medications. But I have heard that the ketogenic diet is particularly helpful in children. You may want to try the diet, before meds, jmi. (((((hugs))))))
Heather :)