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Untreated Partial Seizures of TLE
Sat, 03/28/2009 - 23:59Is there any information about people with simple partials who don't undergo AED treatment?
Not being flippant here but seriously....what happens?
The side-effects of all the meds seem horrifying, and I don't lose consciousness,
Is epilepsy progressive?
Do these little seizures cause brain damage?
Comments
Re: Untreated Partial Seizures of TLE
Submitted by rbrotsky on Sun, 2009-03-29 - 18:45
Re: Untreated Partial Seizures of TLE
Submitted by wldhrt13 on Mon, 2009-03-30 - 00:46
what were your simpe partials like? the reason I ask is I am wondering what the heck kind of seizures I even have at this point. I was diagnosed with anxiety real young (8 years old) no meds. by the time I was a teen I was having fainting spells, micropsia, macropsia, deja-vu and jamais vu. now, after all these years I have some bad tastes in my mouth, ringing in my ear, confusion with inability to speak properly. my past EEG's showed abnormality and sharp waves and slowing, but the latest one is normal. i am finding it difficult to beileve that i have this I guess. does that makes sense?
pam
what were your simpe partials like? the reason I ask is I am wondering what the heck kind of seizures I even have at this point. I was diagnosed with anxiety real young (8 years old) no meds. by the time I was a teen I was having fainting spells, micropsia, macropsia, deja-vu and jamais vu. now, after all these years I have some bad tastes in my mouth, ringing in my ear, confusion with inability to speak properly. my past EEG's showed abnormality and sharp waves and slowing, but the latest one is normal. i am finding it difficult to beileve that i have this I guess. does that makes sense?
pam
Re: Untreated Partial Seizures of TLE
Submitted by 3Hours2Live on Sun, 2009-03-29 - 04:35
discussion/982511 Untreated Partial Seizures of TLE wldhrt13 03/28/2009-07:59pm|3views|1comments March 29, 2009 01:35AM PDT USA Epilepsy appears to be progressive over my life. I've had TLE epilepsy all my life; the seizures at first were simple partial seizures that slowly progressed into more frequent and severe partial complex seizures over my life (the dividing line between simple and complex seizures is confounded by the lack of a valid and objective definition of consciousness); frequent migraines developed in my early thirties, and common tongue biting started in my mid-thirties after which I started Tegretol and Tylenol (the drug combo quickly caused kidney and liver problems; the Tylenol was ended, and the Tegretol continued about a year and a half with out any benifit to my seizures, and the Tegretol was stopped with the 1989 earthhquake without any other AEDs replacing it). I tolerated slowly developing and more and more frequent secondary tonic-clonics, with the partials giving me warning, until clusters of tonic-clonics hit me with little warning when I was 53 and resulted in severe injury; I was put on Dilantin which moderated the tonic-clonics, but aggraveted osteoporosis. Of the other AEDs tried, only Keppra, with titration problems, worked as well as Dilantin. Boniva was tried to moderate the osteoporosis; then Medicaid and/or doctor problems stopped the Keppra and the Boniva, leaving only Dilantin and osteoporosis. Frequently, the notion that even small seizures cause brain damage that slowly progresses into igniting more severe seizures and more and more epileptic brain damage is labeled as "Kindling" for the model of spreading and intensifying epileptogenesis. The kindling model is widely rejected as applying to humans, but is widely accepted as applying to animals based on animal experiments. I hope this helps.