This is my first time here. I'll try to keep this brief. I'm a white male, 41 y/o. In 2002, I developed a blood clot in my leg and had to be put on coumadin, a blood thinner. In 2005, I began having seizures. I consulted a neurologist and several medications were used to control them. But I seldom went longer than 6 months without having one. Eventually I ended up taking Tegretol 400 and Lamictal. Then in August '08 I had another one. While hospitalized, the doctors inserted a filter in my aorta so that I could get off of the coumadin (blood thinner) and start taking dilantin. After getting out of the hospital and seeing the neuro, he put me on a regimen of Tegretol 400, 1600 mg a day, and dilantin 300 mg a day. Things went well, as you can imagine, I was very careful about taking my meds. Then last Saturday I had a seizure. I spent two days in ICU, and three days in a room before being released. This hospital was in a city away from my my home, so local neuros were treating me. On my third day there, two of them came in and informed me that they had figured out what happened. They confirmed with me my meds and dosage, then informed me that you can't take tegretol with dilantin. When I expressed my surprise, they both laughed and said "Yeah, that's not a good idea. It can be done, but EVERYTHING has to be exactly perfect for it to work." Then one of them compared it to balancing a drop of water in a cup of oil without letting it touch the sides. Do any of you know anything about this? I'm beginning to think I need a new neuro. And I'm mad about it. This has cost me a fortune.
But I'd like to know if anyone else has had experience with this or knows anything about it.