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Qudexy XR

Thu, 06/30/2016 - 15:15
Hi, this is my first post on here, so this may have already been a thread elsewhere. I didn't see a search function so I had no way of knowing. My daughter just turned 6 and has been on 100 mg Qudexy once per day. She has been taking this dose for about a year now and has been seizure free to the best of my knowledge since. She has had grand Mal and absence seizures in the past. My concern and question is, that she has pretty extreme issues with focus and attention. Her kindergarten teacher has made observations regarding this as well. She recommended that we try to figure out if she needs medication for ADD during summer vacation so that she can be adjusted to it if needed by the beginning of the next school year. We are trying everything on our end to avoid having to put her on any more medication than she already is at such a young age. With that said, I began researching the side effects of Qudexy XR and have come to find that much of what is considered her "ADD behavior" is also linked to this drug as common side effects. She has an appointment with her Neuro-psychologist next week, but I wanted to see if anyone else has had similar experiences with this drug and what was the end result. Did you switch medications and if so, did it eliminate the side effects? Also, what are you taking now and is it as effective of an anticonvulsant? I will list some of my daughters symptoms of possible side effects below and then cut and paste the list of side effects from the manufacturer's website below that for comparison. I have done some searches but haven't been able to find much by way of other people's personal experience for this particular drug. So hopefully people will chime in on this thread to make it a resource for someone, such as myself, looking for similar information in the future. Mainly it is just very, very difficult to hold her attention for more than 30 seconds. I get that she is 6 and there is an expectancy for this. We have read up on all of the typical behavior for her age and this far exceeds those characteristics. She will be putting her shirt on, get distracted and walk away with her head hanging half way out of the arm hole and walk of to do God knows what. Although this is amusing to see in action, it becomes a bit frustrating when you have to tell her, literally 10-15 times in a row to get back and put her pajamas on. And I'm not talking about saying it and coming back in a few minutes and saying it again until I am up to saying it to her that many times. I am talking, back to back, rapid fire- "get back here and put your pajamas on, get back here and put your pajamas on, get back here and put your pajamas on, get back here and put your pajamas on etc., until she snaps out of whatever zone she is in and acknowledges what I am saying. And when I do it's not like she is annoyed that I have said it that many times in a row. It's more like she just snaps to attention, like she is hearing it for the first time and proceeds to put her pajamas on. This same kind of thing made her tardy 20 times throughout her kindergarten year. This has happened regardless of how early we wake her and no, the TV is not on in the mornings when this happens. She gets hyper: like ON LEVEL 12 kind of hyper and it lasts for hours. I'm not talking about normal 6 year old kid energy here. She will literally bounce off of furniture and babble nonsensical noises out of her mouth like a kid possessed. She has a pretty silly personality, so it's not like she is like some rabid dog running around the house, but it is still, definitely, a bit more excessive than where average kid energy is concerned. She has a hard time remembering things (such as sight words that we have and still go over every day since she got them from school) She will nail them all one day without hesitation and the next day, struggle through half of them. I just wanted to list a couple of examples here to try to avoid as much generalized commentary as possible, where the general things to be expected at that age are concerned. On a more general note of her symptoms, however, she has problems with memory, hyper excesses of energy; but it is not present on a daily basis. She experiences a lot of difficulty staying focused and paying attention where learning, conversation and play is concerned. She will also read and write things completely backwards, but when you ask her what the letters are in sequence to a word, recite them in the proper order. She still pretty routinely puts her shoes on backwards. Those are some of the main observations that seem symptomatic to what I have listed below from the manufacturers website. From the Qudexy website: Call a doctor right away if you have any of these symptoms, especially if they are new, worse, or worry you: thoughts about suicide or dying; attempts to commit suicide; new or worse depression or anxiety; feel agitated or restless; experience panic attacks; trouble sleeping (insomnia); new or worse irritability; feel or act aggressive, angry, or violent; act on dangerous impulses; an extreme increase in activity and talking (mania); other unusual changes in behavior or mood. I would say that she exhibits about 4 of the above symptoms. I know I am asking somewhat of a broad question here, but if anyone could share anything relevant to this, it would be greatly appreciated! Thank you in advance for your help.

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