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Please help - should I change off Tegretol?
Mon, 11/14/2016 - 12:01Topic: Medication Issues
Hi All,
I'm new to this forum and I would love some help if at all possible please.
I'm on 1100MG of Tegretol Slow Release a day, I've been on it for just under 10 years but I think I'm starting to become immune to it because i'm having breakthrough Dejavu's - which is why it was put up from 1000MG to 1100MG daily but they're still happening.
I didn't jump at the chance of changing the medication when I originally went to see my neurologist but now i'm thinking I might need to as I've just read quite a few studies and one is showing that over 1000mg a day puts a birth defect rate up to 5 - 9%!! :(
My Husband and I have been trying for years to get pregnant and now we're going through IVF, I would be heart broken if I caused my child to have a birth defect because I couldn't lower my dosage.
So sorry for the ramble but can I ask a few of things?
- Has anyone been on 1000 + mg a day when pregnant and everything was ok?
- Has anyone changed from a high dose of Tegretol slow release to Lamotrigine and if so how much Lamotrigine were you put on?
- Has anyone changed drugs so close to getting pregnant and been ok? EG no Grand Mal Seizures
I haven't had a Grand Mal for almost 6 years but it is the break through dejavu's I've had, it's just I don't want a 9% risk of deformity for my unborn baby if I am lucky enough to get pregnant.
Thank you very much in advance.x
Comments
I have 2 boys that are 20 and
Submitted by Sylvesterthecat1 on Mon, 2017-03-27 - 20:12
I have 2 boys that are 20 and 23... 23 y.0 has high IQ.... I took and still take 900 mg daily ( not X R) of tegretol.... I took high doses of folic acid while pregnant.... best of luck
If the increase hasn't slowed
Submitted by just_joe on Mon, 2016-11-14 - 13:06
If the increase hasn't slowed the number of seizures down then call your neurologist and discuss that along with your wanting a family and you research your medication. Neurologists know the safest medications for women that get pregnant. A call might be all that is needed to start weaning you off one and onto the new medication and a visit in a 2-3 months should be made