The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Perampanel??

Sat, 07/01/2017 - 05:26
Hi i am about to start on the above medication aswell as levetiracetam and carbamazapine.Has anybody else on here ever used it and how did you find it?

Comments

Hi, I have been on Perampanel

Submitted by shellyp86 on Tue, 2017-07-04 - 15:15
Hi, I have been on Perampanel for past 8 weeks, alongside phenytoin and tegretol. My seizures were frequent and touchwood since I've started the perampanel I've been seizure free. I've not had any side effects from it either which is a bonus as I have side effects from every other one I'm on lol. Hope you get on ok with it

I have not been on these, but

Submitted by whatitisepilepsy on Wed, 2017-07-19 - 20:33
I have not been on these, but I'll leave you with somethings I've told everyone about me. I'll Pray for you. May I suggest talking to your doctor about a med called Lamotrging. I'm also taking VIMPACT with that, and I have the most control I've ever had. We are trying to wing off the vimpact. If that dose not work, I went a whole year without arua or seizures taking a martial arts class. It was not so much what I learned, the over 100 jumping jack, stretching, working my body at least 5 days a week.  You have heard it before," use it or lose it". Exercise make sense. As soon as I stopped everything came back with in a week. Good luck, life with out seizures can be amazing, always try new things don't let it win. 

My 14 yo daughter started

Submitted by echo on Sat, 2017-09-16 - 13:57
My 14 yo daughter started this drug (also called Fycompa) several months ago, working up to a 6 mg dose. And she is also on levetiracetam and oxcarbamazapine.  Over the last 6 weeks we have had good results: her tonic clonic seizures have been eliminated, and she has had only partials of 2 minutes or less, with most of them less than 30 seconds. We are hoping this pattern holds. As was the case before the fycompa, she gets seizures every 2 or 3 weeks. The one side effect is that the 6mg of Fycompa make her very drowsy, so she only takes it at night. That does seem to help her get a terrific sleep nonetheless! Hope it works well for you.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.