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oh this topomax!!! I think I miss the keppra
Mon, 10/31/2016 - 12:10Topic: Medication Issues
so I was on 2000 mg of keppra daily for my focal seizures. I thought it was doing ok, just a lot of the keppra rage. my neuro took me off slowly and put me on topomax. I'm only on 150 mg of that a day. I couldn't handle any higher of that. the side effects of topomax suck!!! I've been on topomax only for about 4 months and the worse of the side effects have eased but some of them remain and I'm still having focal seizures daily. so I go Thursday to discuss my options. I shouldn't have waited this long to call and tell her but I was trying to be tough and wait it out to see if it would start working.
Now I am so depressed. I freaking hate this topomax. I need to see a counselor. I'm going to ask her about that too. Not being able to drive, which I don't understand why she won't let me, I know why but I have never lost consciousness or have never had convulsions, and the have read the laws in my state..
anyway I just wanted to say topomax isn't working for me.. I think it's making me crazy. I'm hearing things and it's making me so depressed. I cry a lot.
Welcome AprilWell it looks
Submitted by just_joe on Mon, 2016-10-31 - 15:49
Welcome AprilWell it looks like the kepRAGE might have been better then this. Any and all medications have their side effects. That also includes over the counter medications. On commercials you always see that ITTY BITTY writing that you can't read at the end and on the bottom. YUP those are side effects. You don't understand why she won't let you drive.. You follow that with I know why but you never lose consciousness. And you have read the State Laws.. Did you read all the regulations written within that law??? <<< the neurologist has regulations written within the laws written by the state. If those regulations are not followed the neurologist may lose their medical license. Did you know that? Yes there are seizures where the person does not lose consciousness. Does that law say seizure free or only convulsive seizures? I have had focal seizures for 50+ years. Those seizures affect my right hand. When I have them they do affect my hand and it will not function like it normally does. I also know that during the seizures I can not answer or talk because it is delayed which means that the delay time is enough to cause an accident.Now do talk to your neurologist but you also need to know that the 2 medications you have used are only 2 of the 60+ seizure medicatins that are available to use. In the 50+ years I have been using seizure medications I have only used 23-27 meds and they all worked.Understand too that yes many people will get complete control meaning no seizures Nd off meds. Others will get seizure free but need to take lower dosages of medications. Then there are people like me who know that they will never be seizure free and their neurologists can consider them controlled.It is all in the way the person or patient sees and uses the word CONTROLLED.