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New to Dilantin and concerned

Tue, 08/01/2006 - 16:14
Hi All, I have been on 2500mg Keppra and recently I saw an Epileptologist. With my TLE not under control and bad side effects of Keppra he decided to change me to Dilantin and reduce/eliminate the Keppra once blood tests were up to theraputic levels. He himself has done research on Keppra and believes that Dilantin may be a good choice for me. I am very concerned because of what I have read about Dilantin. So far I am on 300mgs and little or no side effects except being tired a lot(seizures are reduced by 70% but still there. After blood test, my level was really low. On a positive note, the Dilantin immediately helped with the emotional side effects of Keppra.I would really appreciate any advice with anyone on Dilantin since all I have read about it, is quite unnerving? Thanks for any thoughts, Rita

Comments

Do not take any calcium

Submitted by ChoklatPuma on Fri, 2018-02-09 - 11:05
Do not take any calcium within 2 hours of your does. Dairy affects the absorption. 

Re: New to Dilantin and concerned

Submitted by shellz204 on Tue, 2006-08-01 - 18:40
Hi Rita, I have been on Dilantin for over 10 years. It is the one and only seizure medication that I have been on. I can tell you that for me personally, I dont have too many side effects from Dilantin. Most of them I am so used to, so I dont recall them all. I would suggest Dilantin to anyone. Its done wonders for me. It does take a while to get your Dilantin Blood Level correct, and in doing so, you will feel "off". It took me a couple mths (if not longer) to get it level and get my body used to it. In the mean time, I would experience some light headedness, being tired, anxious, nervous, jittery etc.. What seemed to work well for me, while trying to get the right dose, was eat often. I would take slices of cheese, crackers, grapes, sandwich bites, to work, and I would eat something small every 2 hours. It seemed to lessen all those weird feelings I was getting. When my Dilantin level is low, I get bad headaches, upset stomache, my hands shake, sometimes my vision gets blurred, but once I take an extra pill or two, I feel better almost immediately. But that is something that works for me and I would not suggest you take extra pills without talking to your Dr. After being on Dilantin for so long, I know when my body needs something. Its something you will get used to in time. I have found that if you miss meals, your hands will shake. I used to get upset about it, but now I use it as my "time to eat" sign. :) But I would strongly suggest giving Dilantin a try. The only long term side effect that I have is being tired and some days I have no energy what so ever. Other than that, I pretty much go about my day normally. I hope this information has helped you and I wish you all the best. Keep me posted! Shelley

Re: Re: New to Dilantin and concerned

Submitted by ritab2002 on Wed, 2006-08-02 - 00:38
Shelley, Thanks so much for your feedback and positive experience. Although I do realize how much different meds. affect each of us so very differently much of the info on Dilantin really began to make me question it. As I said, for me so far it has been much better than the Keppra which for many is the miracle drug, not for me though. I have been on Dilantin since June and will continue until it is up to the proper levels. Thanks again, I also wish you the best, Rita

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