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medicine not helping control seizure

Wed, 01/31/2007 - 02:37
any body with seizure taking medication but still having monthly seizure. Question: What's the point of taking medicine when it is not helping in control of seizure. (very costly) Any input

Comments

Re: medicine not helping control seizure

Submitted by Gina Marie on Wed, 2007-01-31 - 16:34
Yes. Except that mine aren't just monthly. I take trileptal, over the last four months I've had it raised from 1200mg to 2100mg, and if anything my seizures got worse. I'm lucky to go two days without one. But like with any condition and any medication it takes time. I believe it takes 4-6 weeks for a medication to build up in your system enough to work consistently. So just changing doses would take months, and with AED's you go up slowly and you come down just as slowly. It takes patience, and when it's something effecting you this profoundly, patience is hard to come by.

Re: medicine not helping control seizure

Submitted by Tjtoday on Sat, 2007-02-17 - 16:33
What medicine do they have you on? How long have you been on it? What feelings do you feel by taking them? How many seizures do you have a week? Remember you are hiring the doctor, does your doctor communicate with you, or knows it all attitude? Your the one with seizures, your the one with feelings, and changes, they learn much more from listening than studying a book. Each epilepsy person does not have same reactions to their medications. Hear from you soon. TJ

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