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Keppra

Mon, 06/01/2015 - 13:27

My daughter - 24 yrs old- has been on keppra for 10 plus years.  It has worked for the most part.  Just recently she has gone into what seems to be a break down.  Panic attachs, paralizing anxiety, weird thoughts, tears, bowel issues.  She is so not herself.  I am scared she is scared.   The Doc is saying it is most likely NOT the keppra since the side effects are so delayed.  I can not help but think it is as those side effects can be related to Keppra.

Anyone have similar experiences after years of using Keppra.  I am so tempted to pull her off of Keppra and deal with seizures just to have her back.  Crazy but desperate.

 

Comments

While side effects do happen

Submitted by just_joe on Mon, 2015-06-01 - 14:21
While side effects do happen during the time period it takes for the body to get used to the medications which it looks like it could be. A person can have some of the same effects if the person is getting to the toxic state,I had a side effect on dilantin and doc stopped the dosage, It was then lowered and I started taking it again. I took it for about 35 years and it did work well. I started having problems and we coul;dn't pin point why. I did everything I cou;d to try and figure out why I was losing my equalibrum 30 minutes after taking my medications. It took remembering what happened the first week I had taken meds. I told Doc and he told me to lower the dosages and he set up an appt with a neurologist in Lubbock the hospital sets on the Texas Tech campus.. well in that appt he ran a few tsts and yes I was toxic on dilantin, I stayed in the hospital foe a couple of weeks while they changed my medicines and saw that I was going to be fime. The change of medications was not weaned off and weaned on. One day dilantin, tegratol and phenobarb. The next day another medication other medications that worked ok but my seizures were increased. I have changed medications several times since then. You might want to call the neurologist and ask him what the symptoms are for someone that might be toxic on keppra. It what he comes up with night be what you are seeing then it could be her problem. I do know keppra is th best seizure medications I have used in the 50+ years I have been living and dealing with epilepsy. You might ask about another medication made by the same company that works well to. Vimpat. Which can be coupled with keppra.  SO if she isn't toxic but near that point her dosage might be lowered and adding vimpat might help control her seizures better. I hope this helpsJoe

Your very welcome Please wean

Submitted by just_joe on Tue, 2015-06-02 - 16:48
Your very welcome Please wean her off as the neurologist tells you to. During the 8 week time period she may have some issues but some will be because her body is having to get used to the new medication while removing the other. Taking a person off medications in one move is and can be dangerous. I had to be in the hospital like I posted because I was moved from one medication to another withot weaning. The way it was done was in the hospital with nurses checking me hourly and the neurologist seeing me 2-3 times a day.Lamictal is a good medication and it does work. I used it many years ago. It was one of the 3 medications I was put on when I was taken off dilantionI jope she gets her medications streightened out and gets seizure freeJoe

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