Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Just Prescribed Keppra

Tue, 05/24/2005 - 22:00
This morning I had an appointment with my neuro. Yet again he has changed my prescriptions, and this time put me on Keppra...Should I be scared? I'll start it on the 1st of June. I've read a few posts regarding Keppra that kinda worry me. My son has already nicknamed me the Wicked Wedgie Woman (long but cute story LOL)...I don't want him to change that to something like the Mommy From H***!!My neuro took me off Topamax in March and since then I've had quite a few seizures. (genrealized tonic clonic) Today, he took me off another one of my meds and replaced it with Keppra. Now taking Keppra (starts on 1st), Lamictal and Zanaflex. I'm trying to find a new neurologist...this one hasn't taken a blood count in over 2 years and an EEG in over 3 years. He is a 2 hour drive away and the closest one to me that takes my insurance. I can't deal with him much longer, though. I just don't think he's doing much for me...just playing around with meds.But, if anyone can tell me the good, the bad and the ugly on Keppra I would appreciate it.Thanks all.....The Wicked Wedgie Woman......or...soon to be??...The Mommy From H***??(maybe you guys can think of a good one lol)

Comments

RE: Just Prescribed Keppra

Submitted by jenn1963 on Tue, 2005-05-24 - 18:21
Hi, my name is Jennifer and I take keppra (1000mg 3xs). I do have mood swings, I've read on this site where some have gain weight, I haven't, and when I first started with it last summer it seemed like I was always tired. I don't know where you are from, but they are some great neurologist in Charleston, SC.Best of Luck

RE: Just Prescribed Keppra

Submitted by grez-monkey on Tue, 2005-05-24 - 18:58

Wicked Wedgie Woman...oops, I mean Sestrilla, lol.

Going from one med to another to another can become frustrating. I've gone through many myself. Never did Topamax. But for now, I am on both Keppra and Lamictal. I will tell you though, don't be scared, just take it slow, VERY slow, with the increaseing dosage of Keppra. I'm talking about 25mgs weekly increases. And keep your eyes open for any serious side effects. The info about Keppra starts on this website www.epilepsy.com/medications/b_keppra_intro.html. But the serious side effectsare on this website www.epilepsy.com/medications/b_keppra_serious.html

Exapmle of what I mean with this. Based on taking medications twice a day:

Week #1: nothing in the morning AND 25mgs at night.

Week #2: 25mgs in the morning AND 25mgs at night.

Week #3: 25mgs in the morning AND 50mgs at night.

Week #4: 50mgs in the morning AND 50mgs at night.

and so on...

It's a long process depending on the overall dosage level to be reached [theraputic level], like 3+ months, but it is safe. If any of the serious side effects start up/begin, then the person has gone into the toxic level.

One thing I do remember, from a neurophycologist's mouth, is that there are no person with epilepsy taking 4 separate/different AED's. 3 separate AED's is enough.

Typing this up just gave me an idea of starting threats to explain more about the AED's. Now added on to my "To Do's" list.

Anyway, at the start of when I began Keppra, I sometimes felt lite-headed, walking sideways, even though I'm walking straight. Imagine yourself spinning around 5 times with your eyes open, stopping and trying to walk in a straight line. This was how I felt, but I really was walking straight. Overall, just took some time to wear-off.

Take care and good luck.

Bruce J

Wicked Wedgie Woman...oops, I mean Sestrilla, lol.

Going from one med to another to another can become frustrating. I've gone through many myself. Never did Topamax. But for now, I am on both Keppra and Lamictal. I will tell you though, don't be scared, just take it slow, VERY slow, with the increaseing dosage of Keppra. I'm talking about 25mgs weekly increases. And keep your eyes open for any serious side effects. The info about Keppra starts on this website www.epilepsy.com/medications/b_keppra_intro.html. But the serious side effectsare on this website www.epilepsy.com/medications/b_keppra_serious.html

Exapmle of what I mean with this. Based on taking medications twice a day:

Week #1: nothing in the morning AND 25mgs at night.

Week #2: 25mgs in the morning AND 25mgs at night.

Week #3: 25mgs in the morning AND 50mgs at night.

Week #4: 50mgs in the morning AND 50mgs at night.

and so on...

It's a long process depending on the overall dosage level to be reached [theraputic level], like 3+ months, but it is safe. If any of the serious side effects start up/begin, then the person has gone into the toxic level.

One thing I do remember, from a neurophycologist's mouth, is that there are no person with epilepsy taking 4 separate/different AED's. 3 separate AED's is enough.

Typing this up just gave me an idea of starting threats to explain more about the AED's. Now added on to my "To Do's" list.

Anyway, at the start of when I began Keppra, I sometimes felt lite-headed, walking sideways, even though I'm walking straight. Imagine yourself spinning around 5 times with your eyes open, stopping and trying to walk in a straight line. This was how I felt, but I really was walking straight. Overall, just took some time to wear-off.

Take care and good luck.

Bruce J

RE: RE: Just Prescribed Keppra

Submitted by Sestrilla on Tue, 2005-05-24 - 19:29
Thank you for your replies, Jenn and Bruce.Jenn.....I live in southern Alabama...not far from the Alabama/Florida border. There are closer doctors in the Pensacola, Florida area, but my insurance will only cover doctors in Alabama. Bruce....My doctor is starting me on a high dosage of Keppra (in my opinion). He wrote the prescription for 750mg tabs...the first week I am only to take half of a tab, after that the whole tab. Maybe it's not too high to begin on...I'll find out pretty soon, though.Thank you, also, for the information and sites on Keppra. I have a week before I start taking it and I want to know what to look out for. Thank you both,Wicked Wedgie Woman.......oops, I mean Sestrilla (real name is Tove)

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.