I have tried EVERYTHING!!!

I have tried lamictal, depokote, keppra, and 3 others that I can't think of right now. I have tried all of them different doses and even changed the brands. And all that has done is make my epilepsy worse plus gave me a shit load of bad side effects.

I was born with a tumor in my brain (a shit load of working veins inside my brain all bunched up together forming a ball) because of that I have epilepsy.

I would get a grand-mal seizure in my sleep maybe 1-3 times a year until 2011 when my boyfriend saw what happened.

I had a grand-mal seizure around 4 in the morning while we where sleeping. I had foam from my mouth and I was blue all over and I never told him about my seizures. Ever since that seizure I was put on medication. First med all I would do is sleep. Sleep at home, wake up to sleep at school, and go home to sleep again! So I was off that, then I was very angry in the next so off that one, then the next gave me psychology problems so I was in a psych hospital for suicide over all the fucking meds I was on at the time (5) then I was put more for that! Then that made me fat and more fucking crazy! 

So I said NO MORE MEDICATION but I was now having EVERY type of seizure EVERYDAY and NIGHT.

When I was sleeping I would have grand-mal (If my body would let me sleep for longer than 2 hours because I don't sleep longer than 4 hours anymore) when I would wake up I would drop down and have another grand-mal, if I could get up and live that day I'll get up from where I would be.

Later I will have auras every 15 minutes and petit ever hour. So my doctors said you want surgery?

I said no surgery, let's try marijuana. I never smoked it at all so ima use it because I am NOT getting surgery (they guaranteed me that I would be in a wheelchair and not be able to talk) so I just started smoking it to see if my body would react in a positive way, because I know for some it's too much. So I would smoke just a bong hit morning,  noon and night and it worked! I was not getting ANY type of seizures not even the feeling of one coming on! But then I guess I started getting immune to this too because my seizures where coming back, so I smoked more and it went away, but that's what kept on happening. Then if I didn't smoke every hour I would get a seizure. I don't want to smoke weed every freaking hour. So I tried CBD oil so I can take the 3 doses everyday and yes! It worked so I would still smoke but not as much just 3 times with the oil. 

But ever since it stopped working,  my seizures (every type) came back and now I pee everytime I have a seizure so I'm pissing my pants 3-4 times daily and I never ever peed in my seizures before so I think everything is just going downhill I need help I don't know what to do anymore

I'm really sad because I can't sleep anymore ( I can't sleep for longer than 4 hours and when I do sleep for that long I have a grand-map) I don't eat anymore and I wonder why I just don't get hungry anymore you would think smoking WEED would get you "high" so your ass is gonna be eating laughing and pass out for being tired but that does not happen to me and idk why. You would think a biggener smoker would feel all of that but I don't.

Plus this marijuana is not cheap and I had to quit my job because I was cash register and I was having auoras every other hour and on my days off I was at the ER! And disability said no to me, plus the only thing that is working, which is weed, is not covered my insurance. The CBD oil I use is a lot because of the ability of my seizures so I finish the CBD oil in just 3 day for 95$? I don't have any money for this I don't know what to do. I just want some advice or meds, your opinion?