Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

How long on meds for 1 seizure?

Thu, 06/29/2017 - 11:08
My son had one seizure at age 18, after a stressful time his senior year and being sick with strep. He had an abnormal EEG a week after the seizure so the neurologist put him on Keppra. He became severely depressed so the neurologist switched him to lamotrigine. He was doing OK for a few months, but now after about a year on 250mg lamotrigine xr the depression is coming back along with concentration issues. He was always a very good student but since taking these meds his grades have been suffering. He is so depressed on lamotrigine right now but the neurologist says it's a mood stabilizer and can't be causing the depression? I don't agree, it states on the medications that a side effect can be depression.. We were sent for a neuropsychological exam to determine what might be causing the depression. It will take weeks to get the results. All the while, no changes have been made and he is still suffering from depression. He has not had a seizure in over 2 years, and I'm wondering how long he needs to be on medication. Is it reasonable to go off meds after 2 years of being seizure free? He just had a 24 hr EEG which was normal, but that was on lamotrigine. Can seizures be controlled with lifestyle changes such as getting enough sleep, exercise, eating healthy? If staying on meds in necessary, what meds do not cause depression, anxiety, anger, etc..? I am desperate to see my son's normal personality come back, this is terrible and ruining his college years. Any advice would be very much appreciated, we go back to the doctor soon.

Comments

After a child has been

Submitted by Toastita on Thu, 2017-06-29 - 12:20
After a child has been seizure free for 2 years and has a normal EEG (on medication), some MD's consider weaning off of meds.  Talk to your MD about this.

Thank you, yes we will have

Submitted by ChicagoMom on Thu, 2017-06-29 - 15:13
Thank you, yes we will have that conversation soon with the doctor soon. If he does have to stay on meds, are there any that don't cause depression, concentration issues, etc..? From what I have ready, they all seem bad !

not everyone gets a possible

Submitted by Amy Jo on Thu, 2017-06-29 - 21:53
not everyone gets a possible side effect such that it needs to be switched out, all these drugs have very individual responses. do you know how abnormal the eeg was, or if there was a specific type of epilepsy diagnosed at the time - it may help you understand more about the possible trajectory of the epilepsy. and remember that he's an adult so he needs to be the one driving the partnership with his doc, hopefully he's been getting the hang of that the past few years. sometimes the possible side effect is really part of or associated with the epilepsy, so it's been no means easy to navigate figuring out what means what for a particular situation. people with epilepsy have a much higher chance of depression - not sure if that's due to epilepsy or just part and parcel of brain differences that just increase the likelihood of depression.lamotrigine should be started or stopped very slowly if he does trial going drug free or switch.  all those lifestyle changes could be helpful if he continues to have seizures but proven approaches are meds, surgery and a strict diet (MAD or ketogenic) - no specific drug or other approach is appropriate/works for everyone.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.