The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Help please

Wed, 02/08/2006 - 23:04
My boyfriend was in a car accident 8 years ago and has been having seizures due to traumatic brain injury ever since. He does not lose consciousness and is able to function while having these things. The doctor is making him take medications, he has no choice. He doesn’t have epilepsy, she said. I need information. Please. Any you can give. He was on medication for 6 years and it made him a mean and awful person who suffered everyday and I don't want to see him suffer anymore. Any information you can give me with any kind of hope. Will he have to take this stuff forever? Will he turn into a zombie? Please help me. I'm so scared I cry all the time. I'm sorry about the cross post but I need help :(

Comments

Re: Help please

Submitted by guitarmomma on Thu, 2006-02-09 - 08:15
I am so sorry you both have had such a rough time. The neuro might mean that even though he has seizures, it is not epilepsy, because it is directly related to the traumatic brain injury. I am not sure, but this is possible. What does his EEG look like/ sometimes that is a better indicator if the meds will always be needed. Since he has such a rough time with side effects, he really should talk to the neurologist and see if he can try a different medication. There are some that have fewer side effects. QUality of life is so important. even though they are not saying epilepsy, treatment and life changes remain the same as if it is. Seizures are seizures. SOmetimes it is called a seizure disorder, but it means the same thing. Hoping he can get better help soon.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.