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Confused

Mon, 10/03/2016 - 12:12
My son maxed his dose of Depakote which is NOT controlling his seizures and now he ha started going into non convulsive status? She will not tell me if that's it. He also has long clusters now in which we use Diastat to snap him out of both. Due to lack of control on that medication I asked he to get him switched to a different AED, seeing as how he has atypical absence I asked about Lamictal (she seems to ignore that idea) Anyway her idea is to put him on Klonopin WITH the Depakote but the Depakote isn't working? I am thinking if the base medication Depakote is not working wouldn't Klonopin just be masking the AED not working instead of the two meds really working together? Then she said in a week she will switch him to Onfi instead of Depakote (I am not sure if she is waiting to see if the first combo works but even if it did, again wouldn't the Klonopin just be masking the fact that Depakote is not working rather then having a base AED that dose work Wouldn't having a AED that dose work then adding a benzo for break threw be the proper action? I read Onfi is used for lennox gastaut syndrome? I really like to know if that is the main use of the med or only reason that Onfi is used for? I keep asking questions she keeps avoiding. I guess i am wondering if she is going for Onfi dose that mean he HAS that syndrome? Or is it used for other epilepsy's commonly? When I look it up it just say's lennox gastaut syndrome. I know these 2 meds are benzos and he's only 4... I know most common benzos well (except for ones like Onfi) As I myself have been on many.... I know the withdrawal and am stuck on them still cause of that. He is only 4 I really don't want to do this unless he really needs them. I mean if its as simple as taking him off Depakote and trying another AED like Lamictal or something then i would rather avoid the Benzo. He only tired two AED's which are Keppra and Depakote. I feel she is just trying to mask that Depakote don't work... Or do you guy's think she is right? Am I just being over paranoid? I am just wondering if anyone else thinks what i said about the Depakote and Klonopin, sound like her just trying to mask a AED that don't work or is it normal to use a Benzo when the AED clearly don't work instead of trying a new AED first? And if Onfi means he has lennox gastaut syndrome if she goes that route? If not how common id it to jump right to Onfi as a benzo fo choice (she may try that one with Lamictal if Depakote and Klonopin don't work) (Note: His behavior has gotten incredibly violent since he started to need the Diastat (5 times within ONE month)I am not sure on delay's as that still needs further evaluation....) Thankyou

Comments

Clobazam (marketed under the

Submitted by just_joe on Mon, 2016-10-03 - 19:19
Clobazam (marketed under the brand names Frisium, Urbanol, Onfi and Tapclob ) is a benzodiazepine that has been marketed as an anxiolytic since 1975 and an anticonvulsant since 1984So Onfi has been used for seizure control for years. Any medication that is deigned to control seizures and has been approved for sale means the tests have shown it works for those type of seizures. However the testing does not stop there. The tests are then done to see the other types of seizures it can control. Following those tests or done at the same time are other tests to see the different medications it can be coupled with to treat seizures.A medication that works for one person may not for the next. The same with dosages. Generally a neurologist uses another patient that has seizures like your child's and starts with the medications that are working for that patient. All of the medications out there to control seizures work.If the medications reduced the number of seizures your son was having then it was working. adjusting dosages and coupling it with another medication should be the next steps. A patient may have more then one type of seizure and type of epilepsy

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