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Changing from Dilantin to Clobazam
Fri, 02/22/2008 - 18:03Hi everyone, I am just new here but have had epilepsy for 20 years. I have recently had a few seizures, now my meds are being changed to clobazam. Due to the side effects of long term Dilantin use. I take grand mal seizures and am a bit nervous if this clobazam 10mg a day will be as effective at the 300 mg of dilantin a day i take now? Can anyone help ease my worry?
thanks Niki
Comments
Re: Changing from Dilantin to Clobazam
Submitted by Nikic on Sat, 2008-02-23 - 16:15
Thanks for your support. I am just worried that clobazam has to be used along with other meds. From what i have read it seems that it mostly is used along with another medication. Yesterday I read that it is addictive as well. if there is anyone who is or has been on this medication I would love to pick your brain.
thanks again Niki
Thanks for your support. I am just worried that clobazam has to be used along with other meds. From what i have read it seems that it mostly is used along with another medication. Yesterday I read that it is addictive as well. if there is anyone who is or has been on this medication I would love to pick your brain.
thanks again Niki
Re: Changing from Dilantin to Clobazam
Submitted by Sicilianna on Fri, 2008-02-22 - 19:55
Hi Niki,
I was on 400mgs Dilantin daily for 40 years and began the switch to Keppra last year at this time. Too many side effects: Bone loss, neuropathy, gingivitis, etc) Epileptologist took reduction very gradually. I've been at only 25mgs daily for the last month and was told today to finally stop Dilantin completely.
I had the very same concern as you: After so many years of pretty reliable control, would any other drug serve me as well? I'm happy to say that the answer is yes. I've experienced simple partials, but I've not had a grand mal in 5 years.
Certainly, my body had to make some adjustments, but I had a successful switch from Dilantin to a new med.
Good luck to you, and keep us posted!
Anna
"...Only God never changes." St. Theresa of Avila
Hi Niki,
I was on 400mgs Dilantin daily for 40 years and began the switch to Keppra last year at this time. Too many side effects: Bone loss, neuropathy, gingivitis, etc) Epileptologist took reduction very gradually. I've been at only 25mgs daily for the last month and was told today to finally stop Dilantin completely.
I had the very same concern as you: After so many years of pretty reliable control, would any other drug serve me as well? I'm happy to say that the answer is yes. I've experienced simple partials, but I've not had a grand mal in 5 years.
Certainly, my body had to make some adjustments, but I had a successful switch from Dilantin to a new med.
Good luck to you, and keep us posted!
Anna
"...Only God never changes." St. Theresa of Avila