Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Briviact users out there?

Sat, 08/06/2016 - 09:03
Hello, I'm new to the forum, a post-craniotomy brain AVM / stroke survivor with uncontrolled partial seizures. Sometimes these are tonic/clonic. In the past year, my neurologist and I have tried several meds, resulting in Depakote for primary treatment. I have not had a good experience with meds at all, so was a bit timid about accepting the Rx supplement of Briviact. Just wondering if anyone out there has had any experienice with the drug. Any advice would be appreciated. Thanks in advance

Comments

Welcomeso you have partial

Submitted by just_joe on Sat, 2016-08-06 - 12:58
Welcomeso you have partial seizures and at times tonic-clonic. You have tired several medications in the past year. A question comes to mind. How long did you take them? Were th dosages changed any either up or down? Consider the fact that it takes time for your body to get used to the medication and once that happens and therapeutic levels are reached which takes about a month dosage changes can be looked at after another month or so. Generally when changing a dosage or medication Doc wants to see me 3-4 months after we started, That gives time for the medication to build up to the therapeutic level he wants and time to varify how it is working and if adjustments need to be made or another medication should be added for better control.Depakote is a good medication but it is also an older medication. I used it and it did reduce my seizures but wanting better control we changed to another medication.Yes neurologists are supposed to try getting control of all seizures with one medication. But at times that will not work so coupling it with another medication might do what is needed. I know today I am taking generic keppra and vimpat, I can say and doc would varify that my seizures are controlled but I will have a seizure every 8-14 days lasting a few seconds. Most people would know nothing about the seizure unles they knew exactly what to look for and when.While looking at Briviact and askingabout it coupled with your depakote you might want to ask about other medications that can help control your seizures. Understand too that just because a seizure is created for a certain seizure does not mean that is the only seizure it controls. I have been in dri=ug studies and I know that after approved for ons seizure the testing moves to other seizures it can stop ad tehn to other medications it can work withI hope this helpsJoe

I'm taking 200 mg a day, not

Submitted by Connor_590302ebdf938 on Mon, 2017-05-22 - 16:43
I'm taking 200 mg a day, not liking it too much but I can't say it's the one medicine because I take Banzel, Lamotrigine, and Zonisimide as well, but I'm getting more tired, fatigued, and the seizures aren't stopping, My nuro says I'm at risk for SUDEP, he'll probably increase my dosage.  

I am currently taking Keppra

Submitted by leannakin on Sat, 2017-06-10 - 05:14
I am currently taking Keppra and had Keppra Rage so bad it was affecting my job, my relationshps, and my mental state of mind became almost suicidal.  I not depressed and have even seen a therapist about it.  My doctor said Briviact would be the answer.  As I read about the drug it seems to have the same side effects.  Did you have any problems with rage on Keppra, and if so has it lessened on Brivact?

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.