Benign Rolandic or Benign Occipital? Medicine?

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Hi, My son had a Status Epilepticus focal seizure that impacted his right side of face, throat and arm. He woke up in the middle of the night with a fever of 100.7 and was convulsing and throwing up. We took him to hospital and his seizure ended after 40 minutes from onset. He seemed conscience and told me he remembers he was almost 4 at the time. They gave him Keppra and Ativan to stop it. He hasn't had any other seizures except until now (4 months later) in September. Hemifacial (right side of face\drooling), while he was taking a nap. I woke him up and the seizure stopped in 1.5 minutes. He had an MRI in May, which was good. He had an EEG in May which was normal. He then had a 1 hour EEG (sleep deprived) and it showed 3 right sided occipital spikes. He then had a 12 hour EEG (sleep deprived) and it showed frequent spikes when he was sleeping, mostly in the right temporal area. I was given the option to give him medication, but have not been told what it is exactly. They mentioned it can be Benign Rolandic or Benign Childhood Occipital Epilepsy. I have the option between Tripital or Keppra. Should I medicate (since most BRE are untreated) and if I should, which medicine will have the least amount of side effects? I don't want to alter my son's personality, he is 4, very smart and full of energy. Can diet help? If diet can help, once he's passed 2 year mark seizure free can he go back to regular diet? Thank you for you help and time in advance, Janice

Comments

WelcomeStatus epilepticus is

Submitted by just_joe on Tue, 2016-09-13 - 19:46

WelcomeStatus epilepticus is nothing to mess with.When a person is in a seizure their temp may go up but it can go down too. If you checked you would see throwing up does happen in many different seizures.They gave him keppra and ativan to stop them... Keppra is becomming the go to medication for seizure control. Ativan is used to treat anxiety disorders, trouble sleeping, active seizures including status epilepticus,It is also known as lorazepam. So these were used it to bring him out os status and control his seizures for awhile.Now you have the option of which medication to put him on. Well Trilipal is a good medication but it too has side effects. It has been used for many years now. I used it back in the early 90's. Keppra is a newer medication which was designed to stop seizures and have fewer side effects. Any and all seizures have them. But as the body gets used to the medication and the therapeutic levels build in his body they will go away. If you checkes or researched you would see posts about it not working or they renamed it Kepprage.. Yes some people will keep the side effects butonce taken off they go away. Now understand that 5-8% of the people taking any medication will get a side effect. Which means that 92-95% have no problems.Triliptal was good and it did help control my seizures. But I wanted more seizures stopped and Doc and I thought another medication might do better. I started using keppra before there was a generic. Yes it was expensive but it controlled my seizures better then any of the other medications I had ever used in hte 50+ years I have been dealing with epilepsy and seizures.If your son was convulsing in the ER and was having a focal seizure then he does need to be medicated, So that is why you are being given tne option of which. The first seizures I had were focal seizures. They affected my right hand. It felt numb from time to time.. The number of times that would happened increasd. Nothing was done because I passed it off. I wa 13. A few months later I had a grand mal seizure. So focal seizures can land in several different types of seizures. From absence to generalized. So if this were my son then I would medicate him. Ask then neurologist how long it will take to get to the therapeutic levels he wants. That is about the length of time it will take for the side effects to go away.I hope this helpsJoe

WelcomeStatus epilepticus is nothing to mess with.When a person is in a seizure their temp may go up but it can go down too. If you checked you would see throwing up does happen in many different seizures.They gave him keppra and ativan to stop them... Keppra is becomming the go to medication for seizure control. Ativan  is used to treat anxiety disorders, trouble sleeping, active seizures including status epilepticus,It is also known as lorazepam. So these were used it to bring him out os status and control his seizures for awhile.Now you have the option of which medication to put him on. Well Trilipal is a good medication but it too has side effects. It has been used for many years now. I used it back in the early 90's. Keppra is a newer medication which was designed to stop seizures and have fewer side effects. Any and all seizures have them. But as the body gets used to the medication and the therapeutic levels build in his body they will go away. If you checkes or researched you would see posts about it not working or they renamed it Kepprage.. Yes some people will keep the side effects butonce taken off they go away. Now understand that 5-8% of the people taking any medication will get a side effect. Which means that 92-95% have no problems.Triliptal was good and it did help control my seizures. But I wanted more seizures stopped and Doc and I thought another medication might do better. I started using keppra before there was a generic. Yes it was expensive but it controlled my seizures better then any of the other medications I had ever used in hte 50+ years I have been dealing with epilepsy and seizures.If your son was convulsing in the ER and was having a focal seizure then he does need to be medicated, So that is why you are being given tne option of which. The first seizures I had were focal seizures. They affected my right hand. It felt numb from time to time.. The number of times that would happened increasd. Nothing was done because I passed it off. I wa 13. A few months later I had a grand mal seizure. So focal seizures can land in several different types of seizures. From absence to generalized. So if this were my son then I would medicate him. Ask then neurologist how long it will take to get to the therapeutic levels he wants. That is about the length of time it will take for the side effects to go away.I hope this helpsJoe

WelcomeStatus epilepticus is nothing to mess with.When a person is in a seizure their temp may go up but it can go down too. If you checked you would see throwing up does happen in many different seizures.They gave him keppra and ativan to stop them... Keppra is becomming the go to medication for seizure control. Ativan is used to treat anxiety disorders, trouble sleeping, active seizures including status epilepticus,It is also known as lorazepam. So these were used it to bring him out os status and control his seizures for awhile.Now you have the option of which medication to put him on. Well Trilipal is a good medication but it too has side effects. It has been used for many years now. I used it back in the early 90's. Keppra is a newer medication which was designed to stop seizures and have fewer side effects. Any and all seizures have them. But as the body gets used to the medication and the therapeutic levels build in his body they will go away. If you checkes or researched you would see posts about it not working or they renamed it Kepprage.. Yes some people will keep the side effects butonce taken off they go away. Now understand that 5-8% of the people taking any medication will get a side effect. Which means that 92-95% have no problems.Triliptal was good and it did help control my seizures. But I wanted more seizures stopped and Doc and I thought another medication might do better. I started using keppra before there was a generic. Yes it was expensive but it controlled my seizures better then any of the other medications I had ever used in hte 50+ years I have been dealing with epilepsy and seizures.If your son was convulsing in the ER and was having a focal seizure then he does need to be medicated, So that is why you are being given tne option of which. The first seizures I had were focal seizures. They affected my right hand. It felt numb from time to time.. The number of times that would happened increasd. Nothing was done because I passed it off. I wa 13. A few months later I had a grand mal seizure. So focal seizures can land in several different types of seizures. From absence to generalized. So if this were my son then I would medicate him. Ask then neurologist how long it will take to get to the therapeutic levels he wants. That is about the length of time it will take for the side effects to go away.I hope this helpsJoe

Benign Rolandic or Benign Occipital? Medicine?

Comments

WelcomeStatus epilepticus is

Submitted by just_joe on Tue, 2016-09-13 - 19:46

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