Community Forum

Topic: Medication Issues

Created By: GreenTara | 2017-02-06 09:35 | 0 Comments

Quick background: I've been on Phenobarbitol (yes, it's old but worked well for me) for decades. Upon discovering I have osteopenia, my neurologist recently had me switch to Lamotrigine...

Created By: EPinDC | 2017-02-05 00:56 | 0 Comments

Hi. I am 53 years ol and have been taking Depakote since I was about 23 or 24. I have had side effects but basically it has worked fine and, most importantly, my seizures have been controlled....

Created By: Jeter2018 | 2017-02-04 08:56 | 0 Comments

Does anyone have any experience with efficacy of taking medication once a day versus twice today. I am on onfi only at night and was curious if it would be more effective if I took it twice a day...

Created By: Sofialopez | 2017-02-03 02:37 | 0 Comments

My 2 year old daughter has been taking trileptal for the past year , they started her off with 2.5 ML twice a day by the 7th month of her being on that medication we started noticing she would...

Created By: csh | 2017-02-01 08:59 | 0 Comments

Has anyone ever taken DDAVP?

Created By: Jeter2018 | 2017-01-30 13:04 | 0 Comments

Has anyone experienced anxiety as a side effect to Onfi? I started on it a little bit ago and noticed as the dose increased my anxiety the morning after was worse. Anxiety was a aura for me, and...

Created By: ndimeck94 | 2017-01-28 03:48 | 0 Comments

I have heard a lot of good things about CBD oil and am looking into it for treatment for myself. I am 22 and have been diagnosed with epilepsy since I was 12. I have been on a few different meds,...

Created By: FiveFootMo | 2017-01-27 17:08 | 2 Comments

Hello,
So just a little backstory...
I have had only 3 grand mal seizures that i've known of. The first was in 2006 and was put on Dilantin. It didn't work because i had...

Created By: JanineS | 2017-01-23 22:13 | 0 Comments

My almost 9 year old son had an EEG was just diagnosed with benign Rolandic epilepsy (pending an MRI to confirm). He was prescribed oxcarbazepine, and we tried the liquid tonight. It tastes really...

Created By: falling_86 | 2017-01-21 15:20 | 0 Comments

I'm so bad in the morning for remembering if I took my pills or not. Then I'll take them thinking I didn't. That's when I overdose and spend the day feeling super dizzy to the...

Created By: mattcoker@hotmail.co.uk | 2017-01-20 19:46 | 2 Comments

Ok so I've seen this topic been posted many a times but there are a few things I want to add.

I am 20 years old and from the UK and have Absence Seizures (Petit Mal). I started taking...

Created By: gcook | 2017-01-19 11:56 | 0 Comments

I am on Lamictol, Keppra and just started Vimpat a month ago. Doctor is lowering my Keppra hoping to get off it. I am up on Vimpat 400 daily. It has not helped since I started lowering Keppra. I...

Created By: shellyp86 | 2017-01-19 07:59 | 1 Comment

Have been on phenytoin 300mg for over 1 year now and getting reduced as starting the new brivat medication. Went for blood test before they reduced and it was at 25, had to go back 1 week later...

Created By: dianalove21 | 2017-01-17 21:59 | 0 Comments

All you have to do is eat at least 15 minutes before taking your medicine, and when I mean eat it has to be something that will get you full. I would always get dizzy when I would take my medicine...

Created By: Glutenwarrior | 2017-01-17 13:46 | 0 Comments

Hello,
I am 34 , i had epilepsy as a child and was wondering if there are any long term effects of tegretol on mental health!
I had my first seizure at age of 3 and tegretol was...

Created By: rlm1924 | 2017-01-17 09:33 | 0 Comments

My husband had a grand mal at 54. He probably had unrecognized absence seizures and twitches before that. He is on keppra er, 2000mg, and Vimpat, 400mg. Since he started this medication, he has...

Created By: aldo11 | 2017-01-17 01:50 | 1 Comment

I have had only 2 seizures in my life. The first one I had when I was a little kid, and the second one when I was 16 years old.

Created By: Kath2297 | 2017-01-16 00:49 | 0 Comments

My mom is 66 and takes Keppra for absence seizures, which started about six years ago. She had a large seizure and started medication afterwards. Not sure exactly how long the absence seizures...

Created By: Zivanov5 | 2017-01-12 09:45 | 1 Comment

Has anyone tried the new drug called Brivlera, a cousin to Keppra? There is very little information regarding side effects of this new drug.

Created By: Strikerafc | 2017-01-11 15:01 | 0 Comments

Very brief history. 2 seizures in my sleep on the same night 20 years ago. Prescribed 300ml of phenytoin to take before bed, had to problems at all. Nommore seizures until 3 years ago had a...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline