Community Forum

Topic: Medication Issues

Created By: Nati | 2017-08-16 16:18 | 2 Comments

It saddens me that one of the most beneficial medications yet isn't covered by any Medicare/ Medicaid. It isn't considered medication, its a supplement.

Do you think it should be...

Created By: Kyla2003 | 2017-08-16 04:42 | 2 Comments

My daughter was diagnosed with partial complex seizures at age 2 and put on Keppra. This summer after 2 yrs of being seizure free with a now normal EEG she was taken off Keppra. She just started...

Created By: Nathandmiller87 | 2017-08-14 11:55 | 2 Comments

Started taking keppra on the 5th. I have had the typical exhausted feeling and emotional issues. I cried on the phone (I do tech support) and had to go home from work one day last week. Today I...

Created By: Meg3217 | 2017-08-13 12:09 | 0 Comments

I just recently moved out of state and have been taking generic topamax from pharmaceutical company Zydus taking the ZD 14 100 mg 2x daily and was taking it for years with great results and great...

Created By: Nirrtix | 2017-08-11 16:09 | 2 Comments

I am trying to lower the cost of my epilpesy medicine. I am on disability, and am capped at what I can earn, however the cost of my epilepsy medicine is around $6000 per year. This cost causes me...

Created By: Nirrtix | 2017-08-11 16:09 | 1 Comment

I am trying to lower the cost of my epilpesy medicine. I am on disability, and am capped at what I can earn, however the cost of my epilepsy medicine is around $6000 per year. This cost causes me...

Created By: OkieMaMa | 2017-08-10 13:00 | 3 Comments

Hey everyone,
So im new to all this seizure stuff, i am 31 years old, stay at home mom..My doctor put me on KEPPRA to see how i do with it..I am going on 2 days taking it. Has anyone...

Created By: SV | 2017-08-09 05:01 | 8 Comments

Hi all, need advice from your experience.
Son diagnosed with partial complex seizures at the age of 4 on 2013. The 1st two years child neurologist put him on trileptal(oxcarbazepine) and it...

Created By: Hakeem_59851b7dce75d | 2017-08-06 22:07 | 0 Comments

Has anyone with drug induced swollen gums used invisalign.

Created By: Hakeem_59851b7dce75d | 2017-08-06 22:03 | 2 Comments

I take Dilantin and lamictal and have gum overgrowth. It is impossible to reduce all plaque since my teeth have moved. I need to straighten them and would like to know if ANYONE has tried...

Created By: danibm88@gmail.com | 2017-08-06 16:00 | 1 Comment

I know it's a long post but please bear with me...

I took Tegretol for 25 years and during that time I had a total of around 5 full seizures. I had frequent auras, about once per month...

Created By: Hakeem_59851b7dce75d | 2017-08-04 21:50 | 8 Comments

I have gingival hyperplasia or extensive gum overgrowth due to Dilantin. I Would like to do invisalign or clear correct but it may not be possible with the gum growth. Does anyone have this...

Created By: specialneeds | 2017-08-04 19:21 | 3 Comments

Just curious if anyone else has had symptoms of a stroke when they were over medicated on these two meds.
I am currently taking 3000 mg of keppra and 500 mg of lamicatal. I had an episode of...

Created By: Canadianchic | 2017-08-04 01:49 | 5 Comments

Hi there, I'm a 38 year old single woman who started getting grandmals(2) 3.5 years ago. After the second one, they put me on keppra 2000mg/ day and it stopped the grand mals but now I get...

Created By: jgriffin | 2017-08-02 20:50 | 1 Comment

Hi need suggestions. I started a new job last month. I've been trying for 2 weeks now to get my Lamictal and Topamax approved thru my new insurance. I have to take the brand name because I...

Created By: Siennapaoni | 2017-08-02 01:01 | 1 Comment

So I've been taking 500mg of Lamictal XR for years now, but experience double vision which is really started to affect me. I'm going into the medical field where double vision can cause...

Created By: umeshkirant | 2017-07-30 13:36 | 1 Comment

My grandfather aged 84 had a focal seizure every month. The doctors gave him 500mg of Sodium Valporate twice a day. It made him feel sleepy almost the whole day, but it was not too bad. He would...

Created By: Abs | 2017-07-29 22:45 | 4 Comments

Hi, my 3 year old has been having daily seizures. She is on keppra, depakote, ONFI and now zonegran. Her head just collapses for seconds and then she goes on with her daily activity. She was...

Created By: DiegoLola73 | 2017-07-29 09:29 | 0 Comments

Lamotrigine and Lamictal have been working very good. My Doctor,Jorge Asconape, change my life. He take his time with me, makes me feel as a valuable person, other Doctors stayed with me 5...

Created By: Becca86 | 2017-07-25 12:50 | 3 Comments

Any ladies of child-rearing age try cannibis for their seizures? I'm going on drug # 7 and hopefully it will work but being on 2 drugs at once is not ideal if I want to get pregnant... any...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline