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Topic: Living With Epilepsy - Youth

Created By: rbarr110 | 2011-08-02 15:05 | 417 Views | 2 Comments

A few months back my son had what appeared to be a stroke.  He had been asleep for about 30-60 min when he was suddenly awake and had complete paralysis of his left side.  He could not move his...

Created By: CaliGirlinSC | 2011-07-30 20:02 | 1026 Views | 1 Comment

My son has absence seizurestriggered by hyperventilation and has been taking Zarontin (15ml) for a few months now. Last night, he had a spell of five seizures in a 20-30 minute time span. I have...

Created By: jbmom | 2011-07-27 22:54 | 257 Views | 0 Comments

ok...this is the 2nd attempt to post this so lets see if it works....we saw my son's neuro doc today who finally agreed that nearly 2 yrs of increased seizure activity...88 in 18 months and 3 meds...

Created By: jbmom | 2011-07-27 22:36 | 576 Views | 4 Comments

We just saw my son's neurologist, who finally after nearly 2 yrs of multiple seizures and upping doses of the 3 meds he is on is offering alternatives...does any one have any experience with VNS...

Created By: Mimi37 | 2011-07-17 14:20 | 342 Views | 1 Comment

Hello everyone, I have a 16 year old son that started having seizures a year ago, he was on levetiracetam,but after the continuous seizures the doctor changed the meds, he started taking Keppra a...

Created By: Colorguardchicka | 2011-07-12 01:08 | 314 Views | 0 Comments

What are some of the causes for grand mal seizures?  I can't seem to find any and I'm hoping anyone can help

Created By: sask1 | 2011-07-10 00:25 | 394 Views | 1 Comment

My daughter has had seizures for almost 2 years following encephalitis. She is currently one 3 different meds and they aren't doing anything.  She is on clobazam, trileptal and topamax.  She...

Created By: mgburtis | 2011-06-22 14:18 | 618 Views | 2 Comments

Hey, I am new to this. I have been on a no caffeine diet for 2 years and I just recently read in a book that starches can affect epilepsy. Has anyone read anything or had any experience with this...

Created By: tarnie23 | 2011-06-13 19:05 | 636 Views | 6 Comments

i have had had epilepsy all my life (petti mal) but have only been diagnosed 5 years.

recently ive been having alot of trouble with my epilepsy, ive been having the electric shocks in...

Created By: brenda-sw | 2011-06-04 13:11 | 422 Views | 3 Comments

My almost 5 yr old is supposed to be starting Kindergarten in Sept. 
Full day, 7 hrs, 5 days a week.  She has BRE and is still napping 1-2
hrs mid day.  We live in NJ and the cut off...

Created By: metsek | 2011-05-30 03:14 | 313 Views | 1 Comment

Hi, I’m suffering from an acute case of insomnia since last 4-5 months. My doc...

Created By: Doublell | 2011-05-27 18:30 | 416 Views | 2 Comments

My 10 year old son has been living with my partials since he was born.  Is there any type of pen pal system that kids can use to discuss how epilpesy affects them ( in regards to their parent)  He...

Created By: Medici1014 | 2011-05-24 11:25 | 324 Views | 0 Comments

Hi Everyone,

The Epilepsy Foundation of Florida is participating in the Chase Community Giving Program and they have the chance to win $500K to develop programs for kids...

Created By: metsek | 2011-05-24 08:38 | 500 Views | 4 Comments

I'm traveling abroad with a group of friends (guys and girls) and I haven’t disclosed this problem to anyone other than my family neither do I want to unless circumstances demand. I wanted...

Created By: PLGW | 2011-05-18 02:46 | 1027 Views | 5 Comments

In November, I saw my daughter having a seizure in her sleep (arms and legs jerking, foaming at the mouth, etc). Since then, her older sister has seen her have two more. I have felt her have...

Created By: Brandon117 | 2011-05-17 08:06 | 498 Views | 4 Comments

Hi, I just created an account here and I'm going to start of by saying that I think it's great that there is a place for people to talk about epilepsy. Now.. I just turned 16. I had my first...

Created By: ashleybryant82 | 2011-05-16 19:03 | 513 Views | 0 Comments

My 17 month old son has simple partial seizures during the day. We have now notices that he is waking up in the middle of the night and then will have a simple partial shortly thereafter. What I...

Created By: jayjordyn | 2011-05-15 22:38 | 391 Views | 2 Comments

I am a parent of a nine year old boy with BRE. He had his first seizure Feb. 26th 08. The first Dr. Attempted to put him on topamax right away after one episode. After consulting my pediatrician...

Created By: judesmommy | 2011-05-13 02:08 | 652 Views | 5 Comments

Please take time to read this and tell me what you know. I am desperate for answers.

History- My son had his first seizure at 14 months old. Triggered by an unknown. He was sick at the time...

Created By: zarir.karbhari | 2011-05-12 03:47 | 369 Views | 0 Comments

Hello

There seems to some sort of consistency in my child's aura / mild seizures.

It happens about an hour after she wakes up in the morning or after her afternoon nap.

What...

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