Topic: Living With Epilepsy - Youth

Created By: Tia68 | 2007-02-05 22:12 | 1 Comment

My son was just officially diagnosed with CAE last week. He was having at least 9 seizures at home, don't know how many at school, a day. Now since Saturday he has stopped them at home, if he does...

Created By: Holly Sox | 2007-01-23 21:48 | 0 Comments

Well,
We just got home from the hospital an hour away where Cody had his second VEEG. The 1st one was last March and was totally unhelpful. He sat for 5 days and had only 1 seizure... over...

Created By: lilliansmom | 2007-01-22 15:39 | 0 Comments

Is there any chance my 29mo old can be having seizures due to low/high sugar? I am being told it is unlikly but I want everything to be checked.

Created By: lilliansmom | 2007-01-20 11:33 | 5 Comments

My daughter will be 2 1/2 next month and has had two seizures-that we know of. She had her first one in sept and they did a EEG and it was normal. We were told there was a good chance she would'...

Created By: MindyRoy | 2007-01-19 15:17 | 1 Comment

Hi!
Some of you may have already read about my daughter, Shelbie. She had a video EEG in Dec. Since that time the doctor changed her medicine to depakote from topamax. She was being weaned...

Created By: Jenniflower | 2007-01-17 14:36 | 6 Comments

I was wondering if anyone can relate to my case. I have a 21 month old that has passed out 6 times. It only happens about once every 2 months. The episodes last 1 minute and he gets so pale...

Created By: oh6512 | 2007-01-09 23:23 | 12 Comments

hi every one
do you know this med AMITRIPTYLIN treat for wat? i have bad headaches and numb , tingling my foot and ams my doc neo. just gave me this i realy don't know he treat me for wat?...

Created By: MindyRoy | 2007-01-08 15:17 | 2 Comments

Hi!
My 12 y daughter was dx with epilepsy in Aug. She has had 4 gran mal seizures with 5-6 daily small siezures (twitches). She had a video EEG on 12/26. The results came in last Friday. She...

Created By: steg2307 | 2007-01-07 22:10 | 1 Comment

HI!! I AM NEW TO THIS SITE, AND WAS TOLD ABOUT IT FROM A WONDERFUL FAMILY AT CHILDREN'S HOSPITAL WHERE WE MET.
WELL MY STORY:
MY HEALTHY NIECE(3 WEEKS OLD AT THE TIME) 2 WEEKS AGO WENT...

Created By: sambailey | 2007-01-06 18:02 | 2 Comments

hi, im currently writing a book and my protagonist is a young boy who suffers from absense seizures. i have researched as much as i could get from the internet but i would like more. if you could...

Created By: Jasons Big Sis | 2007-01-03 16:09 | 0 Comments

I would like to invite everyone to start the new year off with knowledge and power. There is a new non-profit out there whose mission is to speak up for those who can no longer speak. For those...

Created By: Holly Sox | 2007-01-02 21:42 | 8 Comments

Hello,
I just discovered this site tonight. My son is 15 and has had epilepsy since he was 8. He is being evaluated for possible surgery in Augusta, GA, and will have his second video EEG...

Created By: MindyRoy | 2007-01-02 12:08 | 5 Comments

Hi!
My daughter had her video EEG last week. I will know the results this coming Friday. The doctor decided to put her on depakote and take her off topamax. I am wondering if any of you have...

Created By: mcdonaja | 2006-12-30 10:12 | 2 Comments

This year we really noticed an increase with our son's seizure activity leading up to the Holidays.

Can someone tell me if they to have noticed this or if excitement can trigger additional...

Created By: mcdonaja | 2006-12-29 14:38 | 3 Comments

Son 11 has now been treated for 5 yrs for CPS. A year ago he was on a ride at a fair and he had a very significant CPS on a ride. After describing it to the neurologist who wasn't that concerned...

Created By: aussiezoe | 2006-12-26 04:15 | 2 Comments

I know as a 14 year old, how hard it can be to not be able to do such things as sleeping over at friends houses, riding bikes and going on school camps, And i know how alone you can feel when you...

Created By: JV1013 | 2006-12-17 12:53 | 0 Comments

To all who read this blog:

I have a nephew who is 5 years old. He was speaking until right before his 3rd birthday he stopped speaking. We all thought he had autism but later found out that...

Created By: MindyRoy | 2006-12-12 15:15 | 5 Comments

Hi!
My daughter Shelbie has had a few seizures since Aug. Her last one was 2 weeks ago. Before she had this seizure she was playing her gameboy in the dark. We are not sure if that is what...

Created By: jackandcody | 2006-12-12 12:02 | 2 Comments

My son is 4 and was just diagnosed 6 months ago with Rolandic Epilepsy with 2 EEGs. Basically, he will stare, get numb on his lips, and sometimes drool. He has been on several meds.
My...

Created By: KJFloyd7 | 2006-12-05 12:02 | 3 Comments

I will try to keep this as short as I can. My daughter is almost 15 yrs old. On Thursday she came home sick from throwing up at school. She had been complaining for about a week prior to that...

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