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Topic: Living With Epilepsy - Youth

Created By: alexia mom | 2006-09-15 21:59 | 11134 Views | 80 Comments

Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at...

Created By: Michtom | 2006-09-10 05:32 | 287 Views | 1 Comment

Does anyone have any expereince with a diagnosis of tuberous sclerosis? My daughter is 11 and currently takes 2500mg a day of Keprra and 700mg a day of Tegretol CR - and it seems to be working....

Created By: DJsMom | 2006-09-10 02:28 | 260 Views | 1 Comment

My son will be 8 soon. He is in an IEP class with 6 kids at a mainstream Elementary school. Normally, his seizures last anywhere from 2-15 seconds, 1 to 5 times a day, he does not usually get hurt...

Created By: shannon1220 | 2006-09-07 19:54 | 36829 Views | 53 Comments

I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case...

Created By: shannon1220 | 2006-09-07 11:18 | 393 Views | 5 Comments

My 10 yr old son has intractable epilepsy of the right frontal lobe - he has complex partial seizures - he currently takes 1650mg. of trileptal (total) per day; 175mg topamax (total) per day and 7...

Created By: epilepsyandme | 2006-09-06 21:38 | 275 Views | 1 Comment

The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun & Friendship on September 15-17, 2006, in Malibu/Calabasas, California. This Camp is for...

Created By: Wendie | 2006-09-06 13:08 | 331 Views | 1 Comment

Hello

My daughter is 16 and was diagnosed with JME two years ago. She has been on Lamictal 100mg 2xday. She has been seizure free for 1 year. Sometimes she sleepwalks, for example she will...

Created By: alexia mom | 2006-09-03 20:23 | 810 Views | 9 Comments

My 16 year old daugther who was dx with seizures 4 years ago and currently takes Topamax 100mg twice a day is experiencing problems with her feet. If she stands or sits for long periods of time...

Created By: JanetT | 2006-09-01 18:03 | 213 Views | 1 Comment

I am the mother of a son with generalized myoclonic seizure disorder. He had his first seizure 3 days after receiving his drivers license. It has been quite the roller coaster event and I now...

Created By: tak | 2006-08-25 23:25 | 335 Views | 2 Comments

Our son is nearly 10. For three years now he has been taking medication to control fits. This is after an initial grand mal that alerted us to his problem. An EEG showed that he was having almost...

Created By: mariel1212 | 2006-08-24 11:29 | 324 Views | 4 Comments

My 9-year-old son has been diabetic for 5-1/2 years. He had a grand mal seizure about 2 weeks ago. I took him to the ER, he had an EEG 2 days later and we saw a neurologist last week. We got NO...

Created By: momswann | 2006-08-12 09:07 | 318 Views | 2 Comments

Hi all. I haven't posted in a while but need some input. My 13 year old was dx with E in April after her 2nd CT in a week. We have tried topamax (couldn't tolerate the side effects), then depakote...

Created By: Gram3 | 2006-08-06 17:27 | 513 Views | 9 Comments

Does anyone know if puberty and/or hormones increases the frequency of seizures? My grandson had one seizure almost two yrs. ago; then recently had three more increasingly closer together. My...

Created By: schuffert | 2006-08-02 00:14 | 396 Views | 1 Comment

My daughter began having seizures at 6.5 months of age. They are partial complex seizures, sometimes secondary generalized. They have all been status epilepticus, ranging in time from 20 mins to 3...

Created By: cinweek2 | 2006-07-31 20:24 | 11444 Views | 6 Comments

My daughter is 8 years old, and has had Epilepsy for about 4 years now. She doesn't have frequent seizures (about 1 every other month) but they are severe when she has them and require medical...

Created By: Staci17 | 2006-07-30 16:34 | 204 Views | 0 Comments

i am fairly new to this site and need to get some advice. i am recently diagnosed with epilepsy. i experience mostly grand mal seizures. i was taking tegretol 200mg 3x a day. i only had one...

Created By: mjsmom | 2006-07-28 10:04 | 439 Views | 7 Comments

Hi everyone...

I have an 8-year old daughter who was left with a seizure disorder after contracting encephalitis in 2003. It has been a nightmare ever since...I am so stressed and worried...

Created By: Spinfall | 2006-07-11 21:41 | 186 Views | 1 Comment

My son had his first grand mal seizure in December of last year. Since then, he has had one practically every month. The drs started him on keppra (500mg) 2x a day. Now he is up to 1000mg 2x a...

Created By: disneygirl | 2006-07-10 23:53 | 223 Views | 2 Comments

I am not exactly sure if this is the section for this. I am the one having nocturnal seizures and my 10 year old daughter is the only one around to deal with me. They started just over a year ago...

Created By: hwba29 | 2006-07-07 15:55 | 448 Views | 3 Comments

Hi, My son whom is almost 5 woke up the morning with bad stomach pain, he was crying and did go to the bathroom but went back to bed got up again and layed floor in pain for a couple of minutes....

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