Topic: Living With Epilepsy - Youth

Created By: grammy4dolla | 2006-10-23 21:53 | 477 Views | 7 Comments

Hi, I have a four year old granddaughter with epilepsy and autism, she also has delayed development, she has been on many meds since 18 mos. old, and now is having grand mal seizures, VNS has been...

Created By: steviemoffat | 2006-10-05 05:14 | 346 Views | 3 Comments

my 4yr old has had 2 Seizures that we have seen both on holiday to turkey a year apart and both happened when he was sleeping and after he came to he was really sick and really groggy for hours...

Created By: bmsmom | 2006-10-04 23:23 | 261 Views | 0 Comments

Hi. I'm new to this forum so here goes. My 16 yr old son had been waking from deep sleep and making moaning sounds that woke us up. When we reached him he was unable to talk or move for about 2-3...

Created By: Soccerchik1012 | 2006-10-04 22:26 | 996 Views | 15 Comments

Ok well my sister and her boyfriend have motorcycles and one of my sisters friends yelled at me for not telling him that i have epilepsy... i think that it was the right thing to do becuase i...

Created By: angelbaby | 2006-10-04 11:36 | 593 Views | 4 Comments

Hello, Hope someone can give me an answer. I just read that you can spell things or see colours. Is this true? Can seziures cause effects? My daughter is 9 just diagnosed with absent seiures E...

Created By: Stephanie007 | 2006-10-02 16:45 | 479 Views | 7 Comments

Hello!

My 5 1/2 yo daughter was diagnosed last week with a "seizure disorder." When I asked the neurologist whether it was epilepsy, she said, "not yet." I'm not sure where to go or...

Created By: benosmom | 2006-09-23 17:34 | 323 Views | 1 Comment

Hi-My son was diagnosed after having a grand mal seizure in Jan 05. His teachers at school have been saying that he seems "checked out" at times and he seems to be falling behind. He is a very...

Created By: angelbaby | 2006-09-20 14:59 | 628 Views | 6 Comments

Hi everyone, I am new to this forum but went looking for support. My daughter was diagnosed with ADD last year because of difficulties in focusing in school. (Since JK.) We began the ADD...

Created By: jmccand | 2006-09-19 07:25 | 361 Views | 1 Comment

Hi,
I am so frustrated with my daughter's doctor right now. She is 8 y.o. and has had an abnormal EEG, one of her seizures was caught on video tape, which the doctor saw. He has previously...

Created By: benosmom | 2006-09-18 18:25 | 322 Views | 2 Comments

Hi--I have a 9 year old friend who was diagnosed with a seizure disorder last year. It has been in check with meds until now but he recently got sick and it provoked some petit mals. He feels...

Created By: goodmom | 2006-09-17 18:06 | 416 Views | 6 Comments

excuse me if I've posted this before, but I can't find my post, so i'll try again. I hope someone can help.

My 12yrold started complaining of a weird feeling or thought that interrupts her...

Created By: alexia mom | 2006-09-15 21:59 | 11609 Views | 80 Comments

Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at...

Created By: Michtom | 2006-09-10 05:32 | 352 Views | 1 Comment

Does anyone have any expereince with a diagnosis of tuberous sclerosis? My daughter is 11 and currently takes 2500mg a day of Keprra and 700mg a day of Tegretol CR - and it seems to be working....

Created By: DJsMom | 2006-09-10 02:28 | 297 Views | 1 Comment

My son will be 8 soon. He is in an IEP class with 6 kids at a mainstream Elementary school. Normally, his seizures last anywhere from 2-15 seconds, 1 to 5 times a day, he does not usually get hurt...

Created By: shannon1220 | 2006-09-07 19:54 | 38343 Views | 53 Comments

I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case...

Created By: shannon1220 | 2006-09-07 11:18 | 463 Views | 5 Comments

My 10 yr old son has intractable epilepsy of the right frontal lobe - he has complex partial seizures - he currently takes 1650mg. of trileptal (total) per day; 175mg topamax (total) per day and 7...

Created By: epilepsyandme | 2006-09-06 21:38 | 317 Views | 1 Comment

The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun & Friendship on September 15-17, 2006, in Malibu/Calabasas, California. This Camp is for...

Created By: Wendie | 2006-09-06 13:08 | 373 Views | 1 Comment

Hello

My daughter is 16 and was diagnosed with JME two years ago. She has been on Lamictal 100mg 2xday. She has been seizure free for 1 year. Sometimes she sleepwalks, for example she will...

Created By: alexia mom | 2006-09-03 20:23 | 881 Views | 9 Comments

My 16 year old daugther who was dx with seizures 4 years ago and currently takes Topamax 100mg twice a day is experiencing problems with her feet. If she stands or sits for long periods of time...

Created By: JanetT | 2006-09-01 18:03 | 246 Views | 1 Comment

I am the mother of a son with generalized myoclonic seizure disorder. He had his first seizure 3 days after receiving his drivers license. It has been quite the roller coaster event and I now...

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