Topic: Living With Epilepsy - Youth

Created By: elizabethw | 2016-03-03 21:52 | 0 Comments

Hi all, my 2 (almost 3) year old son most likely has PKD (still trying to sort it out for sure, but it's looking likely). I'm curious - has anyone found any kind of support group for...

Created By: mommy_denise | 2016-02-22 16:25 | 1 Comment

Hello, Im Denise. My daughter has been getting seizures since she was 6 months old, she will be 3 in august. They started as Febrile seizures but since her 4th one lasted about 2 hours thats when...

Created By: Romommy1 | 2016-02-17 20:09 | 1 Comment

Does anyone see neuro/epilepsy dr's at Texas Childrens and if so, would you recommend?  I've heard they are excellent but only via professional opinions.  We are looking for the ideal place for a...

Created By: Amarihaith | 2016-01-25 05:14 | 0 Comments

Hi, I was diagnosed with Epilepsy when I 13 or 14 and, every since then I have been having seizures (and before I was diagnosed). Well, in October of last year I had a seizure and I fell out on...

Created By: Weasel296 | 2016-01-20 09:48 | 0 Comments

My son has been head dropping for few seconds last few months, had all the tests and consultant has diagnosed as absence seizures and we've started weaning onto keppra. She has however referred...

Created By: bche1stlovedme | 2015-12-26 22:51 | 0 Comments

15 year old daughter recently diagnosed with seizures related to her visual impairment. We've seen monitors for seizures like watches. Do those really work? Any other suggestions? We have a baby...

Created By: dastan | 2015-12-18 12:07 | 0 Comments

Hello! My cousin is 20yo, right after he was born doctors discoverred he had been damaged, so since then he has an epilepsy. It was quite ok for 18 years, but since last year seizures had risen,...

Created By: Abpie | 2015-11-08 11:12 | 0 Comments

My son has had approximately a dozen episodes that resemble seizures in the last 3 years. He is four. They occur when he hurts himself. They last only 10 to 20 second. He typically cries, then...

Created By: caroline_h_ | 2015-10-27 17:54 | 0 Comments

Hey everyone, I am trying to start a fundraiser to raise money for epilepsy research.  I would like to include stories from people who have epilepsy or have been affected by it in their life.  If...

Created By: AsgardianNerd | 2015-10-26 23:27 | 0 Comments

 

Hi there!  

I'm a sixteen year old girl with JME. About a month ago my doctor added 500 mg of Keppra to my medication list, (which includes 750mg of depakote daily, 50 mg of  ...

Created By: krismar3 | 2015-10-14 22:03 | 0 Comments

My 10 year old daughter was recently diagnosed with Focal Cortical Dysplasia Type 2. Due to similar learning disabilities, the doctor(s) want to do an MRI on her younger sister (age 7). The odds...

Created By: annette_825 | 2015-10-02 21:50 | 0 Comments

Hello! I'm new to all of this. My son is 2 and we just recently found that he is having seizures due to a cavernous malformation in his brain. He was on Keppra but his seizures were only...

Created By: Mom1panda | 2015-10-01 16:52 | 0 Comments

My 24 year old son, was diagnosed with Lennox Gastaut type seizures 8 years ago. For the past three years he has had atonic seizures daily (3 to6 a day).  On 6/26/15, he had a dental procedure and...

Created By: Beth Hop | 2015-09-26 12:27 | 0 Comments

Hello, my son is 16 and he doesn't have seizures as long as he doesn't forget to take his Keppra. Recently he had 2 seizures without forgetting to take his meds which concerned me greatly. I had...

Created By: spershall | 2015-09-23 11:55 | 0 Comments

Hello,

My name is Stacy Pershall, and I'm an author and writing teacher in NYC.  If you'd like to look me up, I wrote a book called Loud in the House of Myself, and I teach for the Johns...

Created By: krismar3 | 2015-09-11 09:37 | 0 Comments

My daughter is 10 years old. Since she was around two she's had behavior issues. She has been diagnosed with ADHD, ODD (she's now outgrown this), anxiety, and has OCD tendencies. The medications...

Created By: Denise@210admin.com | 2015-09-10 10:08 | 0 Comments

How do you discipline and hold a child accountable when they have frequent absence seizures? 

My 12 yr old daughter is on Keppra (which makes her very angry and mean) plus Onfi and trying...

Created By: kalbino | 2015-09-03 11:52 | 0 Comments

Hey everyone-- I'm wondering what your experience is with having "controlled" your seizures but trading off the seizures with uncomfortable side effects from the meds. I'd say that my seizures are...

Created By: spesano | 2015-08-26 19:46 | 0 Comments

Has anyone delt with having a broken arm or leg (from injuries not related to epilepsy) thats in a cast. How do you deal woth your body stiffing/straightening up while seizuring? My son just broke...

Created By: AsgardianNerd | 2015-08-11 21:34 | 0 Comments

 

Okay. So I'm sixteen, and I was diagnosed with JME(juvenile myoclonic epilepsy) in June but I've had five seizures since 2011.

I started having muscle jerks when I was thirteen,...

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