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Topic: Living With Epilepsy - Youth

Created By: RachelSproule | 2015-04-11 19:53 | 25 Views | 0 Comments

i have simple partial seizures (seasonal allergy trigger) well-controlled with topomax I get an aura and when it comes it's really startling. I plan to live on my own. But if I was to have a...

Created By: newards89@gmail.com | 2015-04-05 19:31 | 91 Views | 3 Comments

19

Hey,

I've never done this before... but hopefully someone replies and feels the same way I do. I'm 24 and was diagnosed when I was 14. I used to kind of take my epilepsy like a...

Created By: pneill | 2015-04-02 10:46 | 68 Views | 1 Comment

Has anyone ever experienced seizures exactly at a certain time, morning and night, after taking Trileptal? My son has one exactly 3 hours after his morning and nighttime dose. I know there has to...

Created By: Jjdyer | 2015-03-29 13:23 | 131 Views | 1 Comment

My son is two and had his first seizure in January.  It was a grand mal.  He had an EGG and everything was normal.  He started Keppra.  Two weeks ago he had two grand mals seizures in one day.  ...

Created By: htjones93 | 2015-03-27 18:34 | 91 Views | 0 Comments

I was diagnosed with epilepsy when I was only a year old. I am now 21 years old, and still haven't gotten used to it. This forum is for anyone who needs help, or feels lost.

If you have...

Created By: lisamanaster8@gmail.com | 2015-03-12 21:04 | 105 Views | 1 Comment

Hi,

My 17 year old daughter has a partial complex seizure disorder and has been on Keppra for 11 years (other meds before that.) In December we raised her levels by 50% b/c she was having...

Created By: LovelyWinter | 2015-03-11 15:02 | 130 Views | 1 Comment

Hello, I'm 13 Years Old. A few weeks ago, I started having seizures. They last about 15-25 minutes. Before and After my chest hurts. I don't know what's wrong. Tomorrow I see a neurologist. Can...

Created By: Shannonpecchia | 2015-03-10 12:28 | 153 Views | 1 Comment

My son was diagnosed with benign rolandic epilepsy in July. We didn't medicate him right away. He had another small one in October and another big one in December, after which we medicated. He...

Created By: Jess98 | 2015-03-09 12:10 | 144 Views | 0 Comments

I am nearly 17, and i have been on 2 different medications for the epileptic fits/sezires. (Keppra and Valpro) I was diagnosed at Christmas, 2014 and it is suspected that i have had epilepsy since...

Created By: norawahdani | 2015-02-28 17:52 | 132 Views | 1 Comment

I am 21 years old and I live with my boyfriend, also 21, who suffers from epilepsy. He was diagnosed in 9th grade and has kept his seizures quite managed for the years since then. We have been...

Created By: iani | 2015-02-28 17:27 | 118 Views | 0 Comments

Hi all,

This is my first time in here im very desperate to get some information’s from parent who may similar situation.

 

My child had his first febrile convulsion at age 1...

Created By: Kissy426 | 2015-02-23 11:03 | 198 Views | 3 Comments

last Monday my son (8 years old) had his first seizure. We were out to eat when it happened and we took him to the ER. They told us it was a seizure and referred us to a neurologist. We went to...

Created By: Swest | 2015-02-13 14:48 | 157 Views | 1 Comment

Do seizures from Photosensitive Epilepsy only happen at the time you are exposed to the light or can they happen later like when you are sleeping?

Created By: alakazam_ | 2015-01-26 12:31 | 205 Views | 1 Comment

Hi, I'm just wondering exactly when I should do cannabis if I suffer from nocturnal seizures. These seizures are very random as well. I can go 3 months without one or I could have one each week. I...

Created By: Jmcarls5 | 2015-01-23 18:58 | 188 Views | 0 Comments

Hello, My name is Jeffrey Carlson and I am a graduate student in psychology at Arizona State University. I am conducting research on how caring for a child with epilepsy effects parents and...

Created By: jacobsmom12 | 2015-01-20 16:12 | 380 Views | 0 Comments

Has anyone heard of this embrace empatica smart watch to monitor seizures. I was going to ask doc at my sons next appt if she had heard about this.

 

 

Created By: DinaHB | 2015-01-13 16:28 | 217 Views | 2 Comments

I am the worried parent of a 17 year old.  I would like input from current college students or parents.I can learn a lot from both groups.  My son, is 17, and was diagnosed with epilepsy at 15.  ...

Created By: heidijackson96 | 2015-01-02 12:03 | 186 Views | 0 Comments

Hi, newbie here…

 

I was diagnosed with generalised epilepsy on March 17th last year and am on successful medication. Things such as lack of sleep, alcohol and stress are triggers...

Created By: catalinadelray | 2014-12-31 16:25 | 188 Views | 2 Comments

my little brother went to the hospital a year ago for an intense onset of seizures. he was in the hospital for 5 months, lost and regained his abilities to walk and talk & was released right...

Created By: dauberman | 2014-12-30 13:20 | 211 Views | 0 Comments

When our daughter was 6 months old, she had a febrile seizure which lasted nearly 15 minutes. One side of her body shook. She was running a high fever and after a trip to the emergency room and a...

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