Topic: Living With Epilepsy - Youth

Created By: butterfly2swtlee | 2016-07-26 00:50 | 26 Views | 0 Comments

My 4yo has been having seizures for the last 2 years. We started with a Grand Mal and a week and half later she had another one. She has now had absent, drops, parcial, myocloninc. we are on onfi...

Created By: kittykat61 | 2016-07-21 16:03 | 74 Views | 0 Comments

I've only had 3 seizures my whole life, now being 21 with a fall time job it's hard and weird suddenly finding out you have epilepsy. I've battled through so much as I have no...

Created By: Mumbly | 2016-07-09 04:24 | 86 Views | 0 Comments

I had 3 seizure my entire life, I am 21 years old, the first 2 ones were grand mal I made them when I was 11 and 12 years old, I didn't have a big issue managing them the last one was this...

Created By: torrstorr12 | 2016-07-07 17:45 | 85 Views | 0 Comments

In October 2013 I had my first grand mal seizure. The day leading up to the traumatic night was completely normal; I went to school, attended volleyball practice, and then went to the high school...

Created By: starcatcher34 | 2016-07-02 11:55 | 106 Views | 0 Comments

I'm 17, almost 18, and just received my epilepsy diagnosis a year ago. I've been having tonic clonic seizures for 18 months, but I've been having micro-seizures for almost my entire...

Created By: Caren R | 2016-06-08 12:23 | 163 Views | 0 Comments

Hi everyone. My 13 year-old daughter has been diagnosed with deep temporal lobe epilepsy (simple partials) for 3 years now, though they suspect she's had epilepsy most of her life with...

Created By: Olive123 | 2016-05-31 19:05 | 163 Views | 1 Comment

Hi, so two years ago I was diagnosed with tonic-clonic epilepsy, but have only had 2 full blown seizures in my lifetime. Before my diagnosis I had quite regular absence seizures, but once I was...

Created By: AsgardianNerd | 2016-05-24 00:26 | 167 Views | 2 Comments

Hi everyone! So, I'm currently taking lamotrigine (50 mg 2x a day), Depakote (750 mg a day), and Keppra (1500 mg a day) for JME. I've been experiencing what I think is drug-induced...

Created By: MonsterMom1026 | 2016-05-20 13:40 | 157 Views | 1 Comment

My adopted uncle had his first grand maul seizure when he was 5. I was born 2 yrs later and I grew up knowing about epilepsy. Since i can remember it has always terrified me. My uncle could have...

Created By: sgleason | 2016-05-18 13:48 | 162 Views | 0 Comments

My son was diagnosed this week with Atypical Benign Partial Epilepsy and they suggested keppra. I am so clueless about all of this and feel a bit lost. Do any of you have any experience with...

Created By: Smilemily | 2016-05-11 19:51 | 151 Views | 0 Comments

Hello,

I am a college student who recently inherited the Epilepsy Awareness Club at my university. I was wondering if there is anyone else out there who also has a similar club at their...

Created By: moodi.gfx@hotmail.com | 2016-04-11 14:24 | 184 Views | 0 Comments

so hey people
i am 20 almost 21 .. i live in libya and i am just 3 months far from finishing 2 years seizure free
so my questions is simply .. how do i know that "if i am...

Created By: BLaura21 | 2016-04-05 15:55 | 196 Views | 0 Comments

Hi everyone,
My name is Laura and I'm 15 years old. I was diagnosed with epilepsy last December.
I am not American and in my country, epilepsy awareness is quite terrible, to be...

Created By: Azbritt43 | 2016-03-30 15:39 | 247 Views | 0 Comments

Hi, I was wondering if anyone has tried CBD oil and what your experience was with it. Does it work?

Created By: Azbritt43 | 2016-03-30 12:23 | 254 Views | 2 Comments

My 8 year old son just started randomly having seizures about 1 1/2 years ago. The seizures just occur in his eyes (they twitch an move to the left). We took him to see a pediatric neurologist...

Created By: StephieB | 2016-03-16 19:56 | 281 Views | 0 Comments

Hi! My name's Stephanie. I'm 18 and experienced three tonic-clonic seizures before being put on Keppra. I don't have a formal diagnosis of epilepsy, as my parents are scared to take...

Created By: kelly3 | 2016-03-15 11:46 | 248 Views | 0 Comments

Hi everyone,

My 3 1/2 year old son starting having seizures last August. He had two focal seizures with no known cause and went five months without having any. Then he recently had 3 in the...

Created By: Korri | 2016-03-10 11:51 | 292 Views | 0 Comments

I have been doing a ton of reading and I am hoping someone here can help me.
My daughter is 9 years old. Diagnosed with focal epilepsy at age 2. On January 1st 2015 my mom suddenly passed...

Created By: Jamie Harburn | 2016-03-09 15:01 | 227 Views | 1 Comment

Hi,
I am 17 years old and doing a research project on the ketogenic diet and its treatment of epilepsy. I suffer from a form of epilepsy and can relate to my results that i find.
Could...

Created By: elizabethw | 2016-03-03 21:52 | 226 Views | 0 Comments

Hi all, my 2 (almost 3) year old son most likely has PKD (still trying to sort it out for sure, but it's looking likely). I'm curious - has anyone found any kind of support group for...

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