Topic: Living With Epilepsy - Youth

Created By: joanna_ID | 2016-09-08 14:25 | 0 Comments

Hello, my name is Joanna, and I am an industrial design student working on my senior thesis. My focus for this project is to design a product for individuals with epilepsy. Having a brother with...

Created By: joanna_ID | 2016-09-08 14:08 | 0 Comments

Hello, my name is Joanna, and I am an industrial design student working on my senior thesis. My focus for this project is to design a product for individuals with epilepsy. Having a brother with...

Created By: bijou128 | 2016-09-07 19:04 | 0 Comments

Hi,
My daughter is 8 years old and had seizures for the last 2 1/2 years.
She has had a mixture of tonic clonic and grand mal seizures over this time and finally we have seem to of got...

Created By: magicath | 2016-08-26 18:03 | 0 Comments

Hi, my name is Catharine, and I'm a 16 year old living with epilepsy. I'm currently writing a novel about a teenage girl who is suffering from Progressive Myoclonic Epilepsy. I plan to...

Created By: outtheblue | 2016-08-16 09:21 | 1 Comment

My son, who is nearly 3, has complained of headaches off and on for several months. Every time it was when we were riding in the car, so we attributed it to motion sickness. About a month or so...

Created By: Cassie2531 | 2016-08-08 10:10 | 1 Comment

It's been 2 almost 3 years since I was diagnosed with Coxsackie virus and meningitis and I will tell yourself it was the hardest thing that could ever happen to me. I was unable to walk from...

Created By: Sam415 | 2016-08-05 03:40 | 1 Comment

I'm 16 years old and I like to cook. I have epilepsy also. My question is can I cook at work? My mom doesn't want me to cook because she's worried that I might have a seizure if I...

Created By: Neurofun | 2016-08-01 00:38 | 0 Comments

Before I started having myoclonic seizures, I wet the bed. Did anyone else experience bed wetting prior to seizures beginning?

Created By: Mcculloughsl | 2016-07-28 14:49 | 0 Comments

Looking to connect to other parents who's child has been diagnosed with this gene mutation. We are new to the now newly diagnosed epilepsy life

Created By: butterfly2swtlee | 2016-07-26 00:50 | 0 Comments

My 4yo has been having seizures for the last 2 years. We started with a Grand Mal and a week and half later she had another one. She has now had absent, drops, parcial, myocloninc. we are on onfi...

Created By: kittykat61 | 2016-07-21 16:03 | 0 Comments

I've only had 3 seizures my whole life, now being 21 with a fall time job it's hard and weird suddenly finding out you have epilepsy. I've battled through so much as I have no...

Created By: Mumbly | 2016-07-09 04:24 | 1 Comment

I had 3 seizure my entire life, I am 21 years old, the first 2 ones were grand mal I made them when I was 11 and 12 years old, I didn't have a big issue managing them the last one was this...

Created By: torrstorr12 | 2016-07-07 17:45 | 0 Comments

In October 2013 I had my first grand mal seizure. The day leading up to the traumatic night was completely normal; I went to school, attended volleyball practice, and then went to the high school...

Created By: starcatcher34 | 2016-07-02 11:55 | 0 Comments

I'm 17, almost 18, and just received my epilepsy diagnosis a year ago. I've been having tonic clonic seizures for 18 months, but I've been having micro-seizures for almost my entire...

Created By: Caren R | 2016-06-08 12:23 | 0 Comments

Hi everyone. My 13 year-old daughter has been diagnosed with deep temporal lobe epilepsy (simple partials) for 3 years now, though they suspect she's had epilepsy most of her life with...

Created By: Olive123 | 2016-05-31 19:05 | 1 Comment

Hi, so two years ago I was diagnosed with tonic-clonic epilepsy, but have only had 2 full blown seizures in my lifetime. Before my diagnosis I had quite regular absence seizures, but once I was...

Created By: AsgardianNerd | 2016-05-24 00:26 | 2 Comments

Hi everyone! So, I'm currently taking lamotrigine (50 mg 2x a day), Depakote (750 mg a day), and Keppra (1500 mg a day) for JME. I've been experiencing what I think is drug-induced...

Created By: MonsterMom1026 | 2016-05-20 13:40 | 1 Comment

My adopted uncle had his first grand maul seizure when he was 5. I was born 2 yrs later and I grew up knowing about epilepsy. Since i can remember it has always terrified me. My uncle could have...

Created By: sgleason | 2016-05-18 13:48 | 0 Comments

My son was diagnosed this week with Atypical Benign Partial Epilepsy and they suggested keppra. I am so clueless about all of this and feel a bit lost. Do any of you have any experience with...

Created By: Smilemily | 2016-05-11 19:51 | 0 Comments

Hello,

I am a college student who recently inherited the Epilepsy Awareness Club at my university. I was wondering if there is anyone else out there who also has a similar club at their...

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