Topic: Living With Epilepsy - Youth

Created By: AsgardianNerd | 2016-05-24 00:26 | 63 Views | 1 Comment

Hi everyone! So, I'm currently taking lamotrigine (50 mg 2x a day), Depakote (750 mg a day), and Keppra (1500 mg a day) for JME. I've been experiencing what I think is drug-induced...

Created By: MonsterMom1026 | 2016-05-20 13:40 | 70 Views | 1 Comment

My adopted uncle had his first grand maul seizure when he was 5. I was born 2 yrs later and I grew up knowing about epilepsy. Since i can remember it has always terrified me. My uncle could have...

Created By: sgleason | 2016-05-18 13:48 | 74 Views | 0 Comments

My son was diagnosed this week with Atypical Benign Partial Epilepsy and they suggested keppra. I am so clueless about all of this and feel a bit lost. Do any of you have any experience with...

Created By: Smilemily | 2016-05-11 19:51 | 62 Views | 0 Comments

Hello,

I am a college student who recently inherited the Epilepsy Awareness Club at my university. I was wondering if there is anyone else out there who also has a similar club at their...

Created By: moodi.gfx@hotmail.com | 2016-04-11 14:24 | 105 Views | 0 Comments

so hey people
i am 20 almost 21 .. i live in libya and i am just 3 months far from finishing 2 years seizure free
so my questions is simply .. how do i know that "if i am...

Created By: BLaura21 | 2016-04-05 15:55 | 106 Views | 0 Comments

Hi everyone,
My name is Laura and I'm 15 years old. I was diagnosed with epilepsy last December.
I am not American and in my country, epilepsy awareness is quite terrible, to be...

Created By: Azbritt43 | 2016-03-30 15:39 | 141 Views | 0 Comments

Hi, I was wondering if anyone has tried CBD oil and what your experience was with it. Does it work?

Created By: Azbritt43 | 2016-03-30 12:23 | 162 Views | 2 Comments

My 8 year old son just started randomly having seizures about 1 1/2 years ago. The seizures just occur in his eyes (they twitch an move to the left). We took him to see a pediatric neurologist...

Created By: StephieB | 2016-03-16 19:56 | 194 Views | 0 Comments

Hi! My name's Stephanie. I'm 18 and experienced three tonic-clonic seizures before being put on Keppra. I don't have a formal diagnosis of epilepsy, as my parents are scared to take...

Created By: kelly3 | 2016-03-15 11:46 | 165 Views | 0 Comments

Hi everyone,

My 3 1/2 year old son starting having seizures last August. He had two focal seizures with no known cause and went five months without having any. Then he recently had 3 in the...

Created By: Korri | 2016-03-10 11:51 | 199 Views | 0 Comments

I have been doing a ton of reading and I am hoping someone here can help me.
My daughter is 9 years old. Diagnosed with focal epilepsy at age 2. On January 1st 2015 my mom suddenly passed...

Created By: Jamie Harburn | 2016-03-09 15:01 | 148 Views | 1 Comment

Hi,
I am 17 years old and doing a research project on the ketogenic diet and its treatment of epilepsy. I suffer from a form of epilepsy and can relate to my results that i find.
Could...

Created By: elizabethw | 2016-03-03 21:52 | 152 Views | 0 Comments

Hi all, my 2 (almost 3) year old son most likely has PKD (still trying to sort it out for sure, but it's looking likely). I'm curious - has anyone found any kind of support group for...

Created By: mommy_denise | 2016-02-22 16:25 | 170 Views | 1 Comment

Hello, Im Denise. My daughter has been getting seizures since she was 6 months old, she will be 3 in august. They started as Febrile seizures but since her 4th one lasted about 2 hours thats when...

Created By: Romommy1 | 2016-02-17 20:09 | 184 Views | 1 Comment

Does anyone see neuro/epilepsy dr's at Texas Childrens and if so, would you recommend?  I've heard they are excellent but only via professional opinions.  We are looking for the ideal place for a...

Created By: Amarihaith | 2016-01-25 05:14 | 218 Views | 0 Comments

Hi, I was diagnosed with Epilepsy when I 13 or 14 and, every since then I have been having seizures (and before I was diagnosed). Well, in October of last year I had a seizure and I fell out on...

Created By: Weasel296 | 2016-01-20 09:48 | 227 Views | 0 Comments

My son has been head dropping for few seconds last few months, had all the tests and consultant has diagnosed as absence seizures and we've started weaning onto keppra. She has however referred...

Created By: bche1stlovedme | 2015-12-26 22:51 | 294 Views | 0 Comments

15 year old daughter recently diagnosed with seizures related to her visual impairment. We've seen monitors for seizures like watches. Do those really work? Any other suggestions? We have a baby...

Created By: dastan | 2015-12-18 12:07 | 224 Views | 0 Comments

Hello! My cousin is 20yo, right after he was born doctors discoverred he had been damaged, so since then he has an epilepsy. It was quite ok for 18 years, but since last year seizures had risen,...

Created By: Abpie | 2015-11-08 11:12 | 305 Views | 0 Comments

My son has had approximately a dozen episodes that resemble seizures in the last 3 years. He is four. They occur when he hurts himself. They last only 10 to 20 second. He typically cries, then...

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