Community Forum

What is it like living with JME?

Hi,

I'm a student paediatric nurse, and I am currently working on a presentation about what it's like living with Juvenile Myoclonic Epilepsy - in particular what it is like for a teenager to be diagnosed with the condition. (aged upto 18 years). 

I was wondering if anyone would like to share their experience of living with the condition? Especially if there are any particular things that you find difficult coping with? For example, has this diagnosis affected you socially? how did it affect school? or relationships with friends etc? 

Any responses would be very appreciated!

Catherine

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