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vns for a four year old
Mon, 10/23/2006 - 21:53Topic: Living With Epilepsy - Youth
Hi, I have a four year old granddaughter with epilepsy and autism, she also has delayed development, she has been on many meds since 18 mos. old, and now is having grand mal seizures, VNS has been suggested, does any one know of a child this age who has had this surgery?? and what was the outcome, thank you
Comments
Re: Re: vns for a four year old
Submitted by grammy4dolla on Fri, 2006-10-27 - 16:55
HI Lisa, thanks for your email to me. How old are you now, and is the VNS working for you? The diet is not an option right now, but did you try that too? Let me know how you're doing, thanks.
Re: Re: Re: vns for a four year old
Submitted by angel_lts on Fri, 2006-10-27 - 18:51
My VNS was implanted in 2001 as an adult. It was turned off because of sleep apnea. But I can still turn it on with the magnet when I need it.
I did do the diet about 10 years ago as an adult. It worked very well.
take care
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: vns for a four year old
Submitted by angel_lts on Tue, 2006-10-24 - 10:28
When I had mine done, the youngest was 11. But now they do have kids doing them, but not sure if it is that young. Look into the ketogenic diet too. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/