Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
VNS
Tue, 10/11/2011 - 09:25
My Daughter had the VNS since she was 2 1/2 years old, this will be her 2nd replacement.
She has grand mal and petite, and is mentally delayed due to her seizures.
One good thing is that her seizures are less with the VNS then when she didn't have it. she is also on 3 different medications and one of them is Dilantine. and Keppra. unfortunilty i forgot the 3rd one.
I found out just last week that her battery is running low and she has about at least 2 months of juice left.
for the past week she has been having problems sleeping and wakes up in the middle of the night screaming of pain in her head like having a bad headach. i am not sure of this iis from the VNS. if anyone is older and this happnes please reply back.
Thanks
Manny