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Vagus Nerve Stimulator - Causing Seizures

Wed, 10/07/2009 - 17:12
Topic: Living With Epilepsy - Youth

My daughter had her VNS turned on in July.  We had it increased two weeks ago and in the last week she has had a small seizure almost every night during her sleep.   I think the VNS is causing them.  Before the increase, she would have seizure every 7 to 20 days.  Her Doctor disagrees with me that it cannot be the VNS.  Has anyone else experienced a negative reaction to the VNS therapy?  I would love to hear your story. 

 

Comments

Re: Vagus Nerve Stimulator - Causing Seizures

Submitted by nevergiveup on Wed, 2009-10-07 - 22:45

My daughter got a VNS put in last September.  She had 2 to 4 seizures a month.  She still has that many but now has a bad time sleeping.  Also, she now has nightmares and different kind of seizures coming through.  Also, the VNS has triggered double vision which she never had before.  It is very frustrating.  She always feels the seizure coming on so we thought the VNS would be perfect for her and give her control.  So far, that isn't happening.

 

My daughter got a VNS put in last September.  She had 2 to 4 seizures a month.  She still has that many but now has a bad time sleeping.  Also, she now has nightmares and different kind of seizures coming through.  Also, the VNS has triggered double vision which she never had before.  It is very frustrating.  She always feels the seizure coming on so we thought the VNS would be perfect for her and give her control.  So far, that isn't happening.

 

My VNS doesn't seem to be

Submitted by Queenwiggles on Sat, 2017-07-29 - 14:40
My VNS doesn't seem to be working the way it's supposed to be, it just seems to make it an adjustment to help to me, and it doesn't seem to help at all. I want it out, but Doc doesn't seem to think that it will be any help to take it out. It doesn't work on me. The doctors don't seem to be able to make it work for me. I'm sorry, but it just makes it harder for me on for me to have any kind of quality of life. I'm in bed almost all of the time. I sometimes wish it was all over. I'm so tired of the pain and the memory loss and the injuries because this gadget doesn't work. I have to keep the magnet around my neck so someone can use the magnet can stop the seizures. I am so tired of it all, I just want it out so that I won't be able to so I won't be a puppet anymore. I'd like to have a real life again. I'd like to drive again so I don't have to beg someone to take me to the doctor or anywhere else I'd like to go. Just let me go. Take it out and leave me be.

My VNS doesn't seem to be

Submitted by Queenwiggles on Sat, 2017-07-29 - 15:03
My VNS doesn't seem to be working the way it's supposed to be, it just seems to make it an adjustment to help to me, and it doesn't seem to help at all. I want it out, but Doc doesn't seem to think that it will be any help to take it out. It doesn't work on me. The doctors don't seem to be able to make it work for me. I'm sorry, but it just makes it harder for me on for me to have any kind of quality of life. I'm in bed almost all of the time. I sometimes wish it was all over. I'm so tired of the pain and the memory loss and the injuries because this gadget doesn't work. I have to keep the magnet around my neck so someone can use the magnet can stop the seizures. I am so tired of it all, I just want it out so that I won't be able to so I won't be a puppet anymore. I'd like to have a real life again. I'd like to drive again so I don't have to beg someone to take me to the doctor or anywhere else I'd like to go. Just let me go. Take it out and leave me be.

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