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Trouble With Muscle Control
Tue, 05/26/2015 - 00:35
Hi there. I'm a sixteen year old and was diagnosed with epilepsy almost four years ago after a freak incident in a swimming pool. Since then I've suffered only three seizures, but multiple auras and migraines.
I've lately developed problems controlling my muscles. I get spasms in every parts of my body when I have to do any kind of focused movement (like cutting something, writing, dancing, drawing) and they're so bad that I was forced to sit out of PE on several occasions because I physically couldn't an activity. Then the other day I was running up the stairs in my home and I lost control of my legs and fell down the stairs. It's like I lose control and my legs, arms, hands, or full body just decides they don't want to do the focused activity and gives up on me.
It's frustrating and worrying because it's as if I don't have control over any part of my body anymore because these happen all the time. I wouldn't be exaggerating if I said it's almost every second(although it depends what I'm doing). I'm going to Stanford soon to see a neurologist there so I can get some answers, but I was wondering if anyone else has suffered something similar?
I have Juvenile Myoclonic
Submitted by Britt.awsome@yahoo.com on Wed, 2015-06-24 - 01:13
I have Juvenile Myoclonic Epilepsy or JME for short. I'm 23 and I was diagnosed with epilepsy when I was around 9 or 10 but 15 or 16 when my neurologist discovered I had JME. You are describing myclonus activity which is involuntary jerking of muscles. When I was 15-16 my epilepsy was at its worst. My neurologist had taken me off of my medication due to no epileptic activity he wanted to see if I had grown out of it the summer before I started high school. For the longest time I was great and then slowly started to developed what I called twitches at the time. In the beginning I would be in class writing and have a muscle spasm and my pencil would go across the room, then as it got worse I would be getting ready for school in the morning and my hands would start with the spasms and the next thing I knew I would be falling backwards into the bathroom wall not knowing what the heck had happened I would spill all of my drinks my mom finally had to go buy me a couple of kid sippy cups to keep the spills to a minimum. My severely concerned mom realizing how hard this was all becoming for me contacted my primary physician who told her to contact my neurologist. Having myoclonic activity sucks and it is something that people who have it suffer with(I know I do). My suggestion to you is to stay away from activities that can trigger your aura or muscle spasms. For me being tired or fatigued, stressed, having to make a tough decision quickly, and a few other things trigger mine. But the most important thing for anyone with epilepsy to do is GET ENOUGH SLEEP I cannot stress that enough it will help with the migranes too. You should talk to your neurologist about it and maybe he or she could help figure it out. But in the mean time this might help you with some questions you may have or what not http://www.webmd.com/epilepsy/guide/what-is-juvenile-myoclonic-epilepsy