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Silent seizures

Tue, 11/01/2016 - 14:42
I have a 7yr old daughter who has been having seizures for about 4 yrs now. We do know that she has a brain abnormality causing them,(PMG) but hers have not presented in the typical way. She is usually asleep and wakes up with eyes rolled back and body is pretty limp but torso is quivering ( in a hiccup type way) she does have a weird noise coming from her mouth. She is non-responsive when it is occuring and they tend to last for a while. The first one was by far the worst and she actually quit breathing and was blue right before she vomited, closed her eyes and started snoring. It lasted about 10 minutes, per EMS call records, and has been the longest so far. I have been researching my brain out for some kind of device that can help us with more comfort while she sleeps. So far everything is reactive to the typical movements associated with seizure activity. Does anybody have any advice, besides a seizure dog?? The last seizure she had, her body was a little more rigid and possible quivering/shaking was detected, but not severe. Thanks for the help, Melissa Q from TN

Comments

OK there are different types

Submitted by just_joe on Tue, 2016-11-01 - 16:25
OK there are different types of epilepsy and different types of seizures.. Nocturnal epilepsy can be the type so research that, The type of seizures she may be having is Myoclonic seizures. If you research nocturnal epilepsy you will find that they can have different types of seizures and they generally happen at night. Now you posted this under living with epilepsy - youth. You might find information if you look or post this under parents and care givers. There are many parents that have questions and that is where some parents that answer posts like this will look.Now you should read answers to this post. But there is also a 24/7 help line that you can call..That number is  ____ 1-800-323-1000

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