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Seizures every six weeks?

Fri, 04/21/2017 - 17:56
So I'm new here, but do read a lot of the things on here. A little background... my daughter is ten and only has seizures at night. She has some scar tissue on the back of her brain (from mwdical issues as a baby) that the doctors think are causing this. We think they have been going on for a long time, but since no one saw them we just assumed she was sick when she woke up all weird and ill. I have only seen her have a seizure once (tonic clonic) and every time the aftermath is the same: bed wet, upset stomach, have to have a bowel movement, vomiting, and then sleeping for a few hours to wake up starving and feeling fine! Lately we have noticed a pattern of the symptoms that she has a seizure as every six weeks. Last night she woke up in the middle of the night which is uncommon and vomited. I thought she had a stomach bug. She have a loose bm and vomited again, but went back to bed and slept fine until morning. She was fine, but hungry when she woke up. She takes keppra 100mg/ml 10mls in am and 15 in pm. Does anyone else see this?

Comments

We think they have been going

Submitted by just_joe on Sat, 2017-04-22 - 10:27
We think they have been going on for a long time,  She has some scar tissue on the back of her brain (from mwdical issues as a baby) that the doctors think are causing this.  we have noticed a pattern of the symptoms that she has a seizure as every six weeks. every time the aftermath is the same: bed wet, upset stomach, have to have a bowel movement, vomiting, and then sleeping for a few hours to wake up starving and feeling fine! Well I can say someting about the sleeping. In a tonic clonic the jerking is being done with all her strength which tou do not know about. I todded my step father across my body when I was 13 and couldn;t pick up out bar bell set. Pete only weighed 235 lbs. Tossing him with one are I couldn't do when awake when he could pick me up and toss me without any problem. He was a marine. So sleeping lets her gain back her strength. Yes I was always hungry considering the energy uses took a lot of energy out. There were no left overs in the fridge with me in the house.Each persons seizures is different but can have traits of another persons seizures. Last night she woke up in the middle of the night which is uncommon and vomited. I thought she had a stomach bug. She have a loose bm and vomited again, but went back to bed and slept fine until morning. She was fine, but hungry when she woke up. This site can give you information. Use it and research the different seizuresssss, different stndromes and triggers. There is so much information in it that can be used. I was diagnosed long before they had devices or computers and research was at the touch of a finger. Libraries were where I git mine and the books wer out dates. What I use is found in those old books and my personal experiances. The medication she is on is the best seizure medication I have ever used in the 50+ years I have had epilepsy. It reduced the number of my seizures and the time in them.Use this site look in the help section. Contact her neurologist and talk about these, Depending on the last time her dosage was changed raising it may be neededI hope this helpsJoe

If she is still having

Submitted by mereloaded on Wed, 2017-04-26 - 19:33
If she is still having seizures every six weeks, then perhaps her current treatment is insufficient. Is this the best the doctors can do for her as far as treatment? Keppra at a low dose is a starter treatment since it is a well tolerated wide spectrum aed, but if she is still having symptoms with short intervals in between  then perhaps is time to reevaluate treatment so her symptoms subside.Ask her neurologist if a better treatment/dosage is available due to increased/different symptoms.

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