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School
Thu, 12/15/2011 - 18:13Here's my story :
When I was about 18 months old, I started having seizures, and the doctor's never knew why I was having them, and as time went on, I started getting head - aches that usually had me in the nurses office mostly everyday until the Doctor's finally gave me some medicine when they figured out what I was having.
They gave me three different types of medicine, but they made my seizures progressively worse and finally one worked, I didn't have seizures often, and life was good.
But when I grew older, my seizure's came back worse then ever, and it made my life hell because I was taunted and teased throughout Elementary School and Middle School and I was known as the girl who had "Seizures" and everyone made sure to stay away from me because they thought I had some sort of disease or something.
I admit, these past experiences have made me not want to have friends, because I've made friends in the past that just made my situation worse because I made bad choices in friends, or trusting them way too fast because of the fact that someone was actually talking to me.
My parents and I eventually moved to Washington to take care of my grandmother who's too old to be alone by herself, and I went through the rest of my Middle School life without a care because no one knew I had seizures except the teachers, I still got bullied though, but it was for different reasons.
I still have troubles accepting people into my life because of my past experiences of people letting me down when I tell them I have a seizure disorder, a fear of being rejected because of something I can't help, and a fear that I'll choose the wrong people.
My mom say's I should start making friends because she's says I'm isolating myself and that I'm staying in a little box to protect myself, and is that so bad?
Please Reply Back
- Archangel
Comments
Re: School
Submitted by jasssmit on Sat, 2011-12-24 - 14:36
You definitely need to be more social. I went through a few years of being a recluse cause my memory was so bad that I got tired of not remembering who people were--and I regret it now. I missed out on stuff.
I have a kinda unorthodox view on friends. Most people are just acquaintances to me--we've had to have a pretty good and active relationship to be what I consider to be friends. Theres a lot of people I wouldnt want to be friends with anyway, I'd rather keep them an acquaintance (if even that) and spend my time with the real good friends. As far as how to make them, I've found that me being less judgemental and accepting of other peoples differences has been helpful. Dont consciously strive to be friends with the people you would like to know or whatever. If it happens that okay, just dont strive to be friends with a person in particular. Those friends that you make arent going to have a problem with you having a sz problem. Actually, they'll probably care for you more, meaning be there for you when you have one.
Good luck to you.
You definitely need to be more social. I went through a few years of being a recluse cause my memory was so bad that I got tired of not remembering who people were--and I regret it now. I missed out on stuff.
I have a kinda unorthodox view on friends. Most people are just acquaintances to me--we've had to have a pretty good and active relationship to be what I consider to be friends. Theres a lot of people I wouldnt want to be friends with anyway, I'd rather keep them an acquaintance (if even that) and spend my time with the real good friends. As far as how to make them, I've found that me being less judgemental and accepting of other peoples differences has been helpful. Dont consciously strive to be friends with the people you would like to know or whatever. If it happens that okay, just dont strive to be friends with a person in particular. Those friends that you make arent going to have a problem with you having a sz problem. Actually, they'll probably care for you more, meaning be there for you when you have one.
Good luck to you.
Re: School
Submitted by princesskyles on Thu, 2011-12-15 - 21:07
Here is my pespective,
I do not know how old you are, anything about the type of school you are in, etc. But...
There will be people that treat you as a friend and be there to help you when you need it- only disclose your epilepsy when you feel comfortable
There will be people that will be your friend -nothing else, even if you disclose your epilepsy in a crisis they might walk away (both literally and not literally...they may not be able to deal with the crisis and watch you deal with it all on your own...I had a friend that couldnt handle it, he could at the begining but eventually couldnt...I would have to call for emergency help FOR MYSELF when I was a block...get on emergency meds out, etc...then he would walk the other way if he knew i was going to be ok or someone else was looking after me. Its not their fault, thjey just cand deal it
Others may make fun of you for telling them
Education is the key. I dont know what kind of seizures you have, or how frequent, etc but show people its not bad, not to be scared, etc and how to handle a seizure (whatever kind and each kind properly -that each seizure type is handled differently. You might have to keep it up like I have been doing. But its the best way to get the message across...you dont want help unless asked make that clear. I have to and it still doesnt work at college then I get thown into a wheelchair, sometimes thown out (a big show is made...the last time that happend a few days after when I was doing a presentation the person there that was representing the responders to medical incidents said "but you said I dont want you" ...I tried explaining I dont remember what happens in these seizures...he didnt get it and is suposed to be highly trained in first aid
Here is my pespective,
I do not know how old you are, anything about the type of school you are in, etc. But...
There will be people that treat you as a friend and be there to help you when you need it- only disclose your epilepsy when you feel comfortable
There will be people that will be your friend -nothing else, even if you disclose your epilepsy in a crisis they might walk away (both literally and not literally...they may not be able to deal with the crisis and watch you deal with it all on your own...I had a friend that couldnt handle it, he could at the begining but eventually couldnt...I would have to call for emergency help FOR MYSELF when I was a block...get on emergency meds out, etc...then he would walk the other way if he knew i was going to be ok or someone else was looking after me. Its not their fault, thjey just cand deal it
Others may make fun of you for telling them
Education is the key. I dont know what kind of seizures you have, or how frequent, etc but show people its not bad, not to be scared, etc and how to handle a seizure (whatever kind and each kind properly -that each seizure type is handled differently. You might have to keep it up like I have been doing. But its the best way to get the message across...you dont want help unless asked make that clear. I have to and it still doesnt work at college then I get thown into a wheelchair, sometimes thown out (a big show is made...the last time that happend a few days after when I was doing a presentation the person there that was representing the responders to medical incidents said "but you said I dont want you" ...I tried explaining I dont remember what happens in these seizures...he didnt get it and is suposed to be highly trained in first aid