So I also have epilepsy (grand & petit mal although luckily i've been seizure free for almost 5 years now) and am currently doing my training to become a secondary school teacher.
I am finishing up in a few weeks and on the 27th of october I have to give a 15 minute multimedia presentation on an area of special-needs in school.
I have chosen to do epilepsy as my topic because while I was on my placement in schools, many students were affected by it but it was still quite secretive and there didn't appear to be any in outlined support for these students, which was quite disappointing. Although my personal experience ranged from an awesome compassionate school nurse, another person who wouldn't let me have my pills on me so I had to visit them each day to pick them up, one teacher who I refused to talk to for over 2 months because they (imo) made no allowances, to another who had the patience of a saint through panic attacks and would always stop and spell words for me when I couldn't remember (my biggest problem was not the seizure although they weren't fun, it was adjusting to the medication)
So, could you please tell me
a) how having epilepsy has influenced you or your teen in school (social/physical e.g co-curricular activities aspects)
b) what has been the most difficult aspect to deal with in terms of learning / what has been the biggest barrier to learning (here a more academic view)
c) what your school does or has done to help you or your teen / what have they done that has had a positive or negative impact. (can be individual teachers approaches as I descibed above, or the whole school approach, do they provide a teacher aide etc)
if anyone would be willing to make a short video clip (i only have 15 minutes and this is a small part of my entire presentation) or a podcast it would be so very much appreciated the only incentive I can offer is that this presentation is going to be given to a class of 20+ future teachers to be, so telling them our stories can only better prepare them to have positive experience with future students of theirs who may also have epilepsy.
my email address is firstname.lastname@example.org