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Overwhelmed & concerned
Fri, 01/13/2017 - 04:13Topic: Living With Epilepsy - Youth
My daughter had her first seizure almost a year ago. Now her doctors say she's having both epileptic and pseudo seizures. my biggest challenge is keeping my daughter safe at school. Her doctors prescribed her clonzapam for seizures lasting more than 3 minutes which is more the norm lately. I've submitted the endless forms authorized by her doctors and myself plus had a conference with her teachers training them the best I could. She recently had a seizure and my daughters care was disasterous. No emergency care plan was followed, medicine not administered. I was then accused of never providing school with proper paperwork although I have my copies, proof of conference and her counselor as my witness. Moving forward I have a meeting with the school board and have no clue as to what my rights are. Today, upon the onset of a seizure my daughter called me as I directed her and was suspended for doing so. Had she felt safe there would have been no need. Please help!? At a total loss and my child's education is suffering even more so now.
Does your school have a nurse
Submitted by RTLEmum on Fri, 2017-03-10 - 11:01
Does your school have a nurse? If not, go to the District level nurse. If not, go to the State department of education and ask for help implementing a Seizure Action Plan at school. Let them know that your child's physician orders were not followed. There is usually a nurse who works at the State Level under health services. Your state should have a manual about the rules for medication administration at school. Go to the State Department of Special Education for help, even if your child does not have a 504 or IEP at this time. They should be able to advise you or direct you where to go in your State for help. Your school district should have a policy for medication administration and I doubt they followed it from what you have said. I would write a complaint to the school board as well and mention it in your meeting with them.