Hey, I have just joined because of the reason that even after 3 years.. I have still not come to terms with having Temporal Lobe Epilepsy (after a brain virus).. All through school I kept it a secret except for my close friends, mainly because this other girl with epilepsy was really badly bullied - and my fits were not like hers at all. I have a complete memory wipe out, and I didnt want people to judge me or stereotype me.
I only ever had one fit in school, around my GCSES, and I sat in the corridor with my best friend and then a few seconds later my mind was wiped. I was crying, screaming, i didnt know where i was/who anyone was.
The next day people asked what happened, and I managed to just say i had a panic attack..
Well anyway, now im at college on a HEALTH care course.. and i thought people would 1.be more mature, and 2. these people wanna be nurses.. well i started getting left out of nights out, and i thought oh maybe they just dont like me.. not so bothered about that.. but then i found out its because they are scared im gonna have a fit and wreck their night They also said I am a liability. I have never had anybody say something so hurtful to me.
So im just generally fed up, I have never really accepted that I have epilepsy but I was dealing with it, yeh I did have my downdays but most of the time I was alright because I have great friends.. But these comments have totally made me at a all time low..
I know I shouldnt listen, but it did really hurt, and now i dont want to tell ANYBODY anymore.. until i know them and trust them, but sometimes people do need to know despite that :\
I need cheering up and none of my friends understand what its like, and i dont expect them too. thats why i joined this website. xx