New JME diagnosis

I'm going to apologize for my long post from the beginning, this has already been so hard and it's just begun, any insight or help will be greatly appreciated....My 16 year old daughter had her first seizure on November 12 this year. It was an 8 min long TCS. For two weeks before the seizure she had been complaining that her vision was really bad and was having constant headaches toward the front of her head, kind of how you would describe a sinus headache. I still don't know if that was related....We are stationed in Okinawa, Japan, my husband is in the Air Force. The medical care since the seizure has been beyond frustrating. In the ER she had a CT scan and it was clear. A few weeks later she had an MRI with and without contrast, it showed some subtle changes in the white matter and a 4mm cavernoma on left frontal lobe. The military neurologist on island refused to see her b/c she was a minor, so they sent her MRI images to the Pediatric Neurologist on a AF base in mainland Japan. His impressions were the white matter finding are non-specific and unlikely epileptogenic but he would like a follow up in 4-6 months and the cavernoma appears to be deep and not involve the cortex, thus less likely but not completely ruled out to be epileptogenic and is more likely an incidental cavernoma that needs followup in 4-6 months. This was over a month after her seizure and she still had not been seen by a neurologist. We were basically told no driving for 3 months and the only thing she could take for her constant headache, that had now moved to the right side of her head was Motrin. On the 12th of December she had an EEG w/a local Japanese neurologist, we had the follow up appointment last week. The EEG showed, I think 4 areas of activity and he diagnosed her W/JME. We had a translator but it's still very hard to have a conversation especially since he was so matter of fact and we were so in shock. I asked about the issues with the MRI and he said it did not matter if the EEG showed JME it was JME. No matter what the MRI shows. Has anyone been told they had JME and it be something else? The issue I have with the diagnosis is my daughter doesn't have any of the typical symptoms of JME. She doesn't have any jerks in the morning or any other time of the day and never has. Can you have JME w/o jerks? The other thing is she was diagnosed with ADHD and anxiety around 9 and if I had to pinpoint a time where things seemed to get harder for her it would be 9. She sees a Therapist who is amazing and thank god knows a lot about JME since we still haven't been sent to see an English speaking neurologist. He is now saying that her issues with school , she has a very hard time with math. And her recent bout of severe depression her sophomore year plus the anxiety were all probably part of JME. Is that possible? He feels that what the MRI is showing is that she's been having seizures for a long time and they've caused cognitive issues. How can that be? She's an only child and gets all of our attention,can she be having seizures that we can't see? She had a friend spend all summer with her and they slept in the same bed and she doesn't remember her having any issues while sleeping either. Can she be having completely invisible seizures? If she were having absences I could see how they might be related and she does daze but if you say her name she answers which is why it seems much more like ADHD than JME same with her anxiety. I've researched a ton trying to understand the link,if anyone could shine some light on that I'd be thankful. Her therapist thinks she needs to start Keppra but since we still haven't talked to a neurologist and we wanted to ask more questions before the Japanese neurologist prescribed her Med's she hasn't started anything. The issue I have with the meds besides all of the other terrible side effects is the weight gain. She was taking lexapro last year for her depression and gained 22lbs in 3 months and as a 16 year old girl she was beyond devastated. She got off it and hasn't been taking any anti depressants since but has only been able to lose around 8lbs she is scared to death of another Med that will cause her to gain or want to eat uncontrollably. I've heard some wonderful and some not so wonderful things about keppra but at this point we just don't know where to turn. We are hoping to hear from the neurologist on mainland Japan this week with a second opinion on her EEG and hopefully be taking a trip to see him if he concurs with the Japanese doctor. Sorry for the long post but like I said I with be very grateful for any help...