New to epilepsy and need help

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I am 16 years old and i just finished year 11 at school. I was diagnosed with Complex Partial Blank out seizures. My teachers this year have been emailing my parents complaining of how i have been unable to maintain my grades and a lack of concerntration. I got send to get an MRI and EEG by my neurologist. The MRI was okay, but my EEG showed in the 45 minute period i had lots of seizures. They originated in one part of my brain and covered my entire brain quickly. Then today my neuroglost diagnosed me with Primary Generalised Epilepsy. My Mum took it very hard, she broke down and couldnt stop crying. I am trying to be tough with it, he said i am not allowed to drive, which sucks a bit becuase i should be sitting my half way driving test but cant now. I just need to know how to deal with it? How other poeple handle it? And what should i do about Mum? She is blaming herself becuase she never noticed. Its year 12 next year and thats very important! Is anyone sufffering Epilepsy in year 12? How to deal with it and how difficult is it?
Thanks, any help would be great!

Comments

I see mereloaded answered

Submitted by just_joe on Fri, 2014-12-19 - 12:22

I see mereloaded answered your post. Her son has epilepsy. It isn't easy for the person that gets the diagnosis. Mothers all want their kids to be the best without anything wrong. They all think it is because of something they did or didn't do and yesthey get srtessed. Stress is something you don't need since it can and is a trigger to seizures in some people. I made time to talk to mom and others in the family.I asked questions and answered theirs. What you have is a disability which is not seen. Would she have freaked out if you had to wear glasses? Or use a hearing aid? No she would get what was needed to help you do better and be the kid you could be. epilepsy is a disability (seizure disorder) which is not seen just lie a geart problem or even diabeties. Would she have freaked out with those? Probably not as much since there is no stigma assopciated with them.You should have no problems in school. You are who you are and you can do what your friends can do. Even drive (after going a certain period of time), I was diagnosed while in 8th grade. I had my grand mal during 7th grade. In 5th grade I was in the Honor Roll and they talked to Mom about moving me to 6th grade during the middle of the year. We moved and in 6th grade I started getting written up for day dreaming in class. Several teachers in 7th grade were doing that too, After the grand mal I was put on medications. With that medication those day dreams slowed down to 1-2 a month. Those day dreams were petite mal or focal seizures. I was back up in class. I flunked my senior year and took 1 course in summer school and graduated with a 3-5 average even after I flunked 4 courses.As for suffering epilepsy???? You learn to live and deal with the issues that come up. Other then that you are just like other people. You eat sleep and get arround like everybody else. I have been doing it for 50+ years. I worked while in high school. Which paid for my college. I worked in construction. sales. warehousing, I worked in offices, telemarketing, provisioning, A friend and I opened a business. So I have done many things in my life. YOU CAN TOO As far as MOM tell her you love her and if she has questions she wants answers to ask them. IF you really want then give her the 24/7 help lime to this site or show her this site since there is aforum for parents and care givers. Yes many of us answer those questions too. I do because I know what it was like growning up with epilepsy. I also know that parents and briothers and sisters have questions that may need answering. Like My sister had a seizure but was it a seizure or a one time thing? I am worried she might have another but I don't know how to talk about it with her.Brothers have questions too. I know MY brother had many and I gave him the information I got from books in the library. There were no home computers back in the 1960's and NO FORUMS You will be fine and go far. Tell your MOm you love her and don't stop. I call mine several times a week. In that call I find out how she is and I tell her I love her Please come back and let us know how things are going just-joe

I see mereloaded answered your post. Her son has epilepsy. It isn't easy for the person that gets the diagnosis. Mothers all want their kids to be the best without anything wrong. They all think it is because of something they did or didn't do and yesthey get srtessed. Stress is something you don't need since it can and is a trigger to seizures in some people. I made time to talk to mom and others in the family.I asked questions and answered theirs.  What you have is a disability which is not seen. Would she have freaked out if you had to wear glasses? Or use a hearing aid? No she would get what was needed to help you do better and be the kid you could be. epilepsy is a disability (seizure disorder) which is not seen just lie a geart problem or even diabeties. Would she have freaked out with those? Probably not as much since there is no stigma assopciated with them.You should have no problems in school. You are who you are and you can do what your friends can do. Even drive (after going a certain period of time),  I was diagnosed while in 8th grade. I had my grand mal during 7th grade. In 5th grade I was in the Honor Roll and they talked to Mom about moving me to 6th grade during the middle of the year. We moved and in 6th grade I started getting written up for day dreaming in class. Several teachers in 7th grade were doing that too, After the grand mal I was put on medications. With that medication those day dreams slowed down to 1-2 a month. Those day dreams were petite mal or focal seizures. I was back up in class. I flunked my senior year and took 1 course in summer school and graduated with a 3-5 average even after I flunked 4 courses.As for suffering epilepsy???? You learn to live and deal with the issues that come up. Other then that you are just like other people. You eat sleep and get arround like everybody else. I have been doing it for 50+ years. I worked while in high school. Which paid for my college. I worked in construction. sales. warehousing, I worked in offices, telemarketing, provisioning, A friend and I opened a business. So I have done many things in my life. YOU CAN TOO As far as MOM tell her you love her and if she has questions she wants answers to ask them. IF you really want then give her the 24/7 help lime to this site or show her this site since there is aforum for parents and care givers. Yes many of us answer those questions too. I do because I know what it was like growning up with epilepsy. I also know that parents and briothers and sisters have questions that may need answering. Like My sister had a seizure but was it a seizure or a one time thing? I am worried she might have another but I don't know how to talk about it with her.Brothers have questions too. I know MY brother had many and I gave him the information I got from books in the library. There were no home computers back in the 1960's and NO FORUMS You will be fine and go far. Tell your MOm you love her and don't stop. I call mine several times a week. In that call I find out how she is and I tell her I love her Please come back and let us know how things are going just-joe

I see mereloaded answered your post. Her son has epilepsy. It isn't easy for the person that gets the diagnosis. Mothers all want their kids to be the best without anything wrong. They all think it is because of something they did or didn't do and yesthey get srtessed. Stress is something you don't need since it can and is a trigger to seizures in some people. I made time to talk to mom and others in the family.I asked questions and answered theirs. What you have is a disability which is not seen. Would she have freaked out if you had to wear glasses? Or use a hearing aid? No she would get what was needed to help you do better and be the kid you could be. epilepsy is a disability (seizure disorder) which is not seen just lie a geart problem or even diabeties. Would she have freaked out with those? Probably not as much since there is no stigma assopciated with them.You should have no problems in school. You are who you are and you can do what your friends can do. Even drive (after going a certain period of time), I was diagnosed while in 8th grade. I had my grand mal during 7th grade. In 5th grade I was in the Honor Roll and they talked to Mom about moving me to 6th grade during the middle of the year. We moved and in 6th grade I started getting written up for day dreaming in class. Several teachers in 7th grade were doing that too, After the grand mal I was put on medications. With that medication those day dreams slowed down to 1-2 a month. Those day dreams were petite mal or focal seizures. I was back up in class. I flunked my senior year and took 1 course in summer school and graduated with a 3-5 average even after I flunked 4 courses.As for suffering epilepsy???? You learn to live and deal with the issues that come up. Other then that you are just like other people. You eat sleep and get arround like everybody else. I have been doing it for 50+ years. I worked while in high school. Which paid for my college. I worked in construction. sales. warehousing, I worked in offices, telemarketing, provisioning, A friend and I opened a business. So I have done many things in my life. YOU CAN TOO As far as MOM tell her you love her and if she has questions she wants answers to ask them. IF you really want then give her the 24/7 help lime to this site or show her this site since there is aforum for parents and care givers. Yes many of us answer those questions too. I do because I know what it was like growning up with epilepsy. I also know that parents and briothers and sisters have questions that may need answering. Like My sister had a seizure but was it a seizure or a one time thing? I am worried she might have another but I don't know how to talk about it with her.Brothers have questions too. I know MY brother had many and I gave him the information I got from books in the library. There were no home computers back in the 1960's and NO FORUMS You will be fine and go far. Tell your MOm you love her and don't stop. I call mine several times a week. In that call I find out how she is and I tell her I love her Please come back and let us know how things are going just-joe

New to epilepsy and need help

Comments

I see mereloaded answered

Submitted by just_joe on Fri, 2014-12-19 - 12:22

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