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Need parent help.. Epilepsy or seizure disorder?

Fri, 02/08/2013 - 00:25
My name is Helen and I'm 17 years old. Over the past year, I have had over 100 episodes, which we thought were fainting but turned out to be seizures. I was diagnosed with seizures officially two months ago after an EEG test. I have complex partial seizures and absence seizures, I have only had two tonic clonic seizures. My mom is having a very hard time dealing with my diagnosis. She refuses to call it epilepsy.. She will only refer to it as a seizure disorder. What is the difference? She accuses me of being overdramatic if I call it epilepsy, and it's hurtful to me. Help is very much appreciated, thank you. Any facts or even just advice would be lovely. Stay healthy and safe, Helen xxx

Comments

Re: Need parent help.. Epilepsy or seizure disorder?

Submitted by jtklwalls on Fri, 2013-02-08 - 22:46

I'm sorry if your mom is having a hard time.  I am not sure of the technical difference .   Maybe you can

ask the doctor in front of your mom.  I guess she's in denial with 100 episodes.  I'm a mom so I cant grasp the downplaying of simple medical intervention.  Best wishes. 

I'm sorry if your mom is having a hard time.  I am not sure of the technical difference .   Maybe you can

ask the doctor in front of your mom.  I guess she's in denial with 100 episodes.  I'm a mom so I cant grasp the downplaying of simple medical intervention.  Best wishes. 

Re: Need parent help.. Epilepsy or seizure disorder?

Submitted by Nerak95 on Sun, 2013-02-10 - 00:05

In a nutshell...epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder.   I think some people are afraid of the word epilepsy.

Karen

In a nutshell...epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is also called a seizure disorder.   I think some people are afraid of the word epilepsy.

Karen

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