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Myoclonic Seizures and Lennox-Gastaut
Thu, 03/15/2007 - 22:33Topic: Living With Epilepsy - Youth
Hi all. My son is 4 years old and has been diagnosed with Lennox-Gastaut. He takes a total of 85 mg of Lamictal each day. The Lamictal helps somewhat in controlling the grand mal seizures (he has one about every three weeks) but has done absolutely nothing to control the myoclonic seizures. These seizures occur anywhere from every hour to every fifteen minutes. Our doctor wants to switch his medication (it has been increased twice already), but we've heard that the other drugs have pretty bad side effects for children. Have any of you tried other medications for the treatment of myoclonic seizures in your kids, and how helpful were those medications? There has got to be some way to reduce the number of seizures my son is having. Thanks for all of your help.
Comments
Re: Myoclonic Seizures and Lennox-Gastaut
Submitted by Abbygirl on Thu, 2007-04-12 - 19:24
My daughter also has been diagnosed with LGS. She has also been on Depakote, it has helped the most. We've had her on just about everything because her seizures wre so bad. The Keto diet has helped most. I would definately try it. Now she is on Felbatol. It is our last resort on meds, we are waiting for the VNS right now. LGS is very severe, I didn't realize how bad it could get. We were scared of all the meds so we avoided them at all costs. her seizures kept getting worse now we would give her anything to help but we're afaid it may be too late to get her back to where she was. If you have a good neurologist you trust I would take his advise.
Re: Myoclonic Seizures and Lennox-Gastaut
Submitted by jmccand on Tue, 2007-03-20 - 09:17
My daughter is on Dapakote for Absence and myoclonic seizures. However, her frequency of seizures is not as high. It is helping very well. Most of her side effects went away after a few weeks. The only one she has trouble with is sleeplessness, but we changed when we give it to her, and that is not as much of a problem anymore. She also has short term memory problems, but that was a problem before getting on medicine. Lori