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mom the one with epilepsy

Mon, 07/10/2006 - 23:53
I am not exactly sure if this is the section for this. I am the one having nocturnal seizures and my 10 year old daughter is the only one around to deal with me. They started just over a year ago. She has now been sleeping with me because shes scared something will happen when im asleep. Im looking for any kids who's parents are the ones with epilepsy so my daughter can talk with others who understand what shes feeling.any help on this would be great. Thanks

Comments

Re: mom the one with epilepsy

Submitted by susie27 on Tue, 2006-07-11 - 05:26
Hi, I'm not sure that I can be much help with this but we were in a similar situation as my mother has nocturnal epiliepsy which worsened when my parents split up when I was 10 years old. It was very frightening at first but as time when by it did become much less scary. I think all you can do is make sure she knows what to do when you have a seizure and try and reassure her that it is very unlikely that any harm will come to you through epilepsy. Are there adults that she can call if she is particularly worried that something is wrong? I remember that at the time it was really scary, and I was convinced that my mum was going to seriously injure herself while she was having a seizure but 18 years on she still has seizures but she is absolutely fine and she has spent several years of that time living by herself. I think all you can do is try and reassure your daughter, and as she gets older, your epilepsy will just become a fact of life for her. Good luck with it anyway.

Re: mom the one with epilepsy

Submitted by angel_lts on Tue, 2006-07-11 - 19:46
I know exactly what you are dealing with. I have seizures now for 36 years. I have four children. My youngest is a girl and is 16. When my husband is not home, or is away, she watches over me like a hawk. She wants to sleep with me. I just dont want her to. FOr I dont want her to worry so much. I feel she wont sleep right either. I dont want her to carry it all on her shoulders. If you would like to chat e-mail me and I will set up e-mail exchange with my daughter. It would be good for her to chat too. angel_lts@yahoo.com take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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