Hi. I am a first time visitor to your forum and appreciate the opportunity to ask a question. My daughter is 9 years old. She has some history of brain injury from a fall in early childhood and was also exposed to drug abuse prenatally (she is adopted). From the ages of 3-6 she had occasional absence seizures. She had an EEG when the seizures started at age 3 which was normal. Her whole life I have always been told from any doctor she ever saw that this type of seizures was a benign condition which she will probably outgrow.
About a year ago she began experiencing very frequent and severe headaches. The pediatric neurologist did an EEG which was normal and said it was just migraines and put her on a preventative drug which did not help. She is now on her fourth preventative drug. A few months later she began experiencing these types of attacks which last about fifteen minutes with severe burning, electrical type pains. She has had them in different parts of her body and are sometimes also associated with muscle cramps. She has had them inside her head, in her left eye, on her spine, in her feet and neck but they only happen about once a month. A few months after that she began experiencing episodes of tunnel vision, double vision and blurry dots in her field of vision frequently. These visual problems are not constant but probably happen at least a few times per week. She also has episdoes where her left eye closes and she can't open it, sometimes for a few days at a time. I think she may have had some new kind of seizure a few months ago, too but I can't be sure. At the time, she was talking to me but she didn't really seem to be making sense and her eyes were moving back and forth all the way across her eyes kind of like a pendulum. After it stopped she seemed to be confused and didn't seem aware of this behavior. I only observed this one time, however.
Her eyes have been checked by an opthamologist and a neuro-opthamologist and are normal. She has had an MRI of her brain (normal except for a small area of old brain damage which probably happened pre-natally). Her pediatric neurologist says that she just has regular migraines and her visual complaints and complaints about burning pains are just "school avoidance" and "attention seeking behavior". He said her history of head injury was not relevant and her MRI results with brain damage were just an incidental finding. We only have the one pediatric neurologist in our state so my options are limited.
The neuro-opthamologist suggested that it could be seizures and she might benefit from a video EEG. Does this sound like any kind of seizure disorder anyone is familiar with? I'm just trying to figure out a direction I need to go with this or if I should just accept that this is just migraines since I will definitely need to take her to another state if I want any assistance with a different diagnosis.